Working together to get supplies to vets in NJ

Con-way Truckload delivers much-needed supplies

Con-way Truckload delivers much needed supplies for East Coast veterans

Hurricane Sandy may be starting to fade from news headlines, but it’s still a tough reality for so many families on the East Coast. Today, Easter Seals applauds its partner Con-way Truckload for making an urgent delivery of much-needed supplies to veterans groups in New Jersey and New York.

The pro bono shipment of first-aid kits, food, toiletries, blankets, shoes, coats and other clothing items arrived via a 53-foot Con-Way Truckload truck at Easter Seals New Jersey, fittingly, on Veterans Day. Program participants, staff, and families are working to repackage the much needed supplies to share with area veterans groups from the New Jersey and New York metro area this week.

Here at Easter Seals Headquarters in Chicago, it was heartwarming to watch this unfold. AllHumanity Group LLC, a group dedicated to solving humanitarian problems, wanted to donate goods for veterans in need, but had no means of transporting them from South Carolina up to Easter Seals in New Jersey. The donation became a reality when Con-way immediately stepped in to help, providing seamless transportation for the 24 pallets of supplies.

In the midst of disaster, Con-way came through! Thank you.

 

We celebrate veterans all year long

Richard MarielloVeterans Day was last Sunday, but Easter Seals celebrates veterans all year round. Last month, I had the privilege of meeting Easter Seals 2013 National Adult Representative Richard Mariello. I love that he said, “At Easter Seals, you just help each other out. You’re like a big extension of the Mariello family.”

This year Richard will be travelling to all sorts of events to share his story and speak about the importance of services for members of the military, veterans and their families.

Most importantly, Richard and his family will be providing a human connection to what is happening overseas. When we hear firsthand from veterans, their work becomes real to those of us who are removed from the military. We learn why it’s important to care, and what a valuable resource Easter Seals is.

To find local support if you’re a military family, or want to learn how to make a difference for military families, call Easter Seals Community One Source at 866-423-4981 or email us at veterans@easterseals.com.

 

Hang out with a military veteran today

Cpl. Mervin RoxasIt was Veterans Day this past Sunday, and the media started noticing how Easter Seals is providing military service members, veterans and their families with resources they need to make smooth transitions before, during and after deployment. One example: Easter Seals Southern California’s Mervin Roxas was mentioned in a story in USA Weekend. The article talked about Mervin’s transition from the military to civilian life.

In 2004, Mervin was manning a machine gun atop a patrol vehicle when an improvised explosive device (IED) exploded. Three Marines died. Mervin lost his left arm and shoulder, and his jaw and cheekbone were shattered.

Mervin spent 11 months at Walter Reed Army Medical Center in Washington, D.C., before being medically discharged. He knows the challenges veterans experience when they return home, and for the past 4 years he has been working as a Program Assistant at the Easter Seals Southern California office in Brea.

I have had the privilege of meeting Mervin. He is truly an amazing person with an inspiring story, and now you have a chance to meet him today, too. He will be part of a live webcast hosted by Google+ Hangouts and usatoday.com. Tune in TODAY at 2:00 p.m. ET (1 p.m. CT, noon MT, 11 a.m. PT) to hear our veterans, experts and disability groups discuss their experiences and talk about what they see as the main priorities for the Obama administration moving forward.

 

Blind justice?

Image of an 'I Voted' sticker, with an asterixA post I published here on the Easter Seals blog last week explained how people who are blind like me can use a touch screen machine with audio output to vote independently. I wrote another post after that listing hotline numbers for people with disabilities to call if they encountered any problems voting at their polling places. Good thing that list of hotline numbers was here — I ended up referring to it myself!

I took a free class years ago that was offered by the City of Chicago so I could learn how to use the assistive technology I’d need to vote independently: the blind user puts headphones on, listens to the choices, and punches a button on a special contraption connected to the keyboard to register their choice.

My polling place did have the special equipment on hand last Tuesday, but no one there knew how to make the sound work. Is the volume turned all the way up? Is it plugged in? Touch the screen, maybe that will start it up. I can see it on the screen, can’t you hear it? Is there something wrong with the headphones?

A special poll worker was called to the scene. “You’re the first blind person I’ve ever had,” she said, flipping through the troubleshooting handbook. “Sorry, though. Nothing in here about talking machines.” My husband Mike was there voting, too, so he signed an affidavit, guided me to a voting booth, read the choices out loud and I told him (and anyone else near enough to eavesdrop) who I wanted to vote for.

This was nothing new. A similar thing happened when I tried to vote independently at that same polling place back in 2008. My issue with the voting machine couldn’t be resolved then, either. So back in 2008, I called the National Federation of the Blind’s (NFB) hotline, and voting specialists recorded details and referred my issue “to the proper authorities for follow-up action.”

When I called the NFB hotline again this year, the kind woman on the phone sounded surprised. The sort of assistive technology they had at my precinct usually works, she said. She took down my information, and then suggested I call my State Board of Elections. I did.

After a fair amount of time on hold, someone from the Illinois Board of Elections finally answered and listened to my story. “Were you able to vote in the end, then?” Yes, I said, but I wasn’t able to do it independently. I did my best to explain that the Help America Vote Act of 2002 mandates that voting systems provide some way for people to vote independently and privately, including those of us with disabilities. The Illinois Board of Elections assured me my poll workers would report the problem to the correct authorities and have it fixed. “You got assistance, then?” they asked. I told them yes, that my husband had signed an affidavit, that Mike had helped me in the voting booth. “So you were able to vote, then?” they asked. I said yes. “Okay, then, you’re all set,” they said, and hung up.

I called the other hotlines listed on my Monday blog, too. The woman at the voting section of the U.S. Department of Justice (Civil Rights Division) asked me for details, took down notes and said someone will contact me. The volunteer at the Lawyers’ Committee on Civil Rights under Law Election Protection Hotline asked a number of multiple choice questions, and together we came to the conclusion that the real problem here was not that the people at my polling places were uncaring or nefarious. They just weren’t trained appropriately.

So why bother putting any time and money into assistive technology if you’re not going to train people to know how to turn it on? The poll workers at my precinct wanted the technology to work for me, they just didn’t know how to make that happen. I am not angry at them, I am just disappointed to think that in the end, at least for me, the whole idea of people with disabilities voting independently in this election was a ruse.

 

Go, Auburn go!

Auburn playing tennisOn Thursday, October 25, Easter Seals welcomed Auburn Smith from Daytona Beach, Florida as OUR 2013 Youth Representative. Auburn is 15 years old and has been receiving services at Easter Seals Volusia & Flagler Counties since she was seven months old.

Auburn is a nationally ranked wheelchair tennis player, and she and her parents point to the value of Easter Seals early intervention and inclusive childcare services for helping her be the successful athlete she is today. Auburn continues to receive physical therapy here at Easter Seals Volusia & Flagler Counties to improve her balance.

An article about Auburn in the Daytona Beach News-Journal quotes Auburn’s proud father, Jimmy Smith, “We are very proud of her and all the things she’s accomplished,” he says, adding that he is also proud of the way “everything has worked out in her life and how Easter Seals has helped us from the very beginning since she was a baby.”

Here at Easter Seals Volusia & Flagler Counties, we are all very proud of Auburn and her family, too. Go, Auburn, go!

 

Hotlines to help with access at polling places

When I’ve had problems accessing the talking voting machines in previous elections, I called the National Federation of the Blind’s toll-free hotline at 877-632-1940, and voting specialists were there to try to help me and the poll worker resolve the issue. Other hotlines are ready to help people with disabilities who have problems voting too:

  • U.S. Department of Justice, Civil Rights Division, Voting Section: for complaints related to ballot access, call 800-253-3931, or 202-307-2767. TTY: 877-267-8971
  • Bazelon Center for Mental Health Law: for questions about competency of voters/mental Illness issues, call Jennifer Mathis at 202-467-5730 ext. 122
  • Lawyers’ Committee on Civil Rights under Law Election Protection Hotline: For help with disability/access issues, call 866-OURVOTE.

During the 2008 election my issue with the voting machine couldn’t be resolved, and my husband, who can see, had to sign an affidavit to be able to help me with a written ballot. Voting specialists on the National Federation of the Blind hotline recorded details and referred my issue “to the proper authorities for follow-up action.” My hope this year is that the follow-up worked, and things go smoothly — not only for me, but for all of us at the polling places. It would be swell if none of us had to make use of these hotline numbers, but it sure is reassuring to know there are experts on the line, ready to help us if necessary.

 

Because of Mary

By now you’ve probably heard about the controversy surrounding a certain political pundit’s use of the “R” word. Easter Seals’ friend Ellen Siedman from Love That Max has explained to readers again and again why this word is offensive. We waited for an apology, but a post on Disability Scoop confirms we aren’t going to receive one.

While reading through these articles, I couldn’t help but think of my favorite blog, The Wise Guise and my friend Joseph’s post there about Mary, his sister who has special needs. After reading his heartfelt words, excuses like “it’s just slang” and “it wasn’t directed toward your kid” seem moot. I’ve easily sliced this word from my vocabulary. Why? It’s because of people like Mary.

 

Good news and bad news about early voting

I’m blind, and the Help America Vote Act of 2002 requires voting systems to provide independent and private voting for all voters — including those of us with disabilities.

In the past couple of elections, I’ve gone to my polling place on voting day expecting to use their touch screen machine with audio output to vote. With sound added to the ballot, I could put on headphones, listen to the choices, and punch a button on a special contraption connected to the keyboard. That is, if someone knew how to get the machine and the contraption to work. It isn’t exactly intuitive.

And really, the biggest glitch in audio voting comes right at the beginning. I sign in, and poll workers scramble. all of them seem to want to do right by me, but few of them know what “right” is. Where are the headphones? How do you start the talking machine? Why isn’t the audio working?

So this year, I decided to vote early. I could pick a day that worked best for transportation or personal assistance, and I could go to a polling place at a time that was less crowded, busy, or stressful. If there were any glitches, we’d have time to work them out.

Before I voted, I learned what candidates and issues are on the ballot in my area by linking to a League of Women Voters website. It provided personalized voter information after I entered my mailing address. I went to another site to find out when and where early voting is available in my area, called the poling place for walking directions and set off to vote alongside my Seeing Eye dog Whitney.

The bad news? There was an hour wait! The good news: A lot of people are voting! Whitney and I turned around and went back home — we’ll give it another try tomorrow.

Stay tuned for a future blog post with a list of hotlines you can call for assistance if you have any problems at the polling places voting in this election, and here’s hoping i don’t have to make use of any of those phone numbers when I try voting early again!

 

Here’s an easy way to help us here at Easter Seals

Share your two cente on our Web site redesignWe’re redesigning our Web site, and the best way to figure out what changes to make is to ask the people who use it: you!

If you would take a few moments to complete our Easter Seals Web site redesign survey, we’d really appreciate it. We value your opinion, and we want you to come back to our site again and again for information about helping people with disabilities gain greater independence. Your responses to our survey questions will shape the future of our Web site — thanks for your help!

 

TV stars at Texas Star Academy

Leslie Kipp (whose son Clark graduated from Texas Star Academy) and Janet St. James from WFAA-TV

Leslie Kipp (whose son Clark graduated from Texas Star Academy) and Janet St. James from WFAA-TV

Earlier this month Easter Seals North Texas was featured in a story on WFAA-TV in Dallas/Ft. Worth showcasing our inclusive school. Texas Star Academy is the only preschool in North Texas that provides an opportunity for children with autism and other disabilities to learn alongside peers without developmental disabilities. Our preschool is open to both typically developing children and kids with a developmental diagnosis ages 12 months to six years.

A reporter from WFAA-TV interviewed Leslie Kipp, whose son Clark graduated from Texas Star. this fall, he moved on to a traditional kindergarten, and his mother credits Texas Star Academy for helping her son succeed.

I was interviewed for the story, and while I was quite nervous, I was also really excited to have the opportunity to talk about this program. I felt the news piece did a really nice job showing the diversity of our population and the wonderful staff we have working here. I do wish we had more time to discuss applied behavior analysis (specifically the incidental teaching model) and also mention Easter Seals’ Make the First Five Count campaign. Oh, well. I guess there is only so much that can be said in a 90 second piece!

I thought viewers might understand why a parent would want a child with autism or another disability to attend our school. I wanted them to know it is a positive experience for typically developing children too, so I was glad to see that the finished piece quoted me saying how effective our inclusive school is in teaching all the kids there to learn skills such as language skills, how to interact with others, and how to play with each other.

Most important, though, was the message that our school also teaches their peer models how to be stronger leaders. I also thought it was great in showing that all of our children have strengths to share with one another and that no matter one’s ability, we can all learn from each other.