Autism and the economic divide

by Erin Rogers

A Newsday article looks at why affluent school districts “classify more than five times as many of their students with autism as districts at the opposite end of the economic spectrum.”

The Newsday survey drew on state data from school districts whose enrollments were more than 500.

Advocates who have compiled similar data voice concern that many poor, minority youngsters might not be getting the same extensive, state-mandated services available to those identified as autistic…

Medical experts blame the problem not so much on schools as on a lack of quality health care in low-income neighborhoods. Research shows toddlers in poor families who aren’t taken on regular visits to pediatricians are less likely to have their autism diagnosed when it first appears — usually, before age 3.

This news is disturbing. Early treatment is vital for children with autism, and it pains me to hear of children falling through the cracks.

At Easter Seals Peoria-Bloomington, we screen all children regardless of income. We team with daycare centers, health departments, school districts, and social service agencies in our area to get the word out.

April Leopold, the supervisor of screening here at Easter Seals Peoria-Bloomington, describes it this way:

“We go out into the community where kids are. We then make referrals and linkages for families to the state’s Early Intervention Programs, local school district programs, community programs and services.

We found that we have to go where the children are in order to catch them.”

A basic rule for treating autism is the earlier the intervention, the better. I’m pleased we screen children here no matter what their income level — I just wish this was happening more often in other parts of the country.

Preschool children with autism need early intervention programs like ours to help them learn skills they’ll need to be successful in school. And in life.

Read Erin Roger’s biography.

Maurice and autism: big winners in Vegas

by Maurice Snell

Last week, I traveled with my father and my colleague Patricia Wright to the Red Rock Hotel in Las Vegas. We were there to take part in a press conference about the new Autism Services Program at Easter Seals Southern Nevada.

The new program will feature services such as early intervention and therapeutic programs and will benefit many families. This press conference was headed by Brian Patchett, CEO of Easter Seals Southern Nevada. The key speakers included Deborah Meinberg, Director of Easter Seals Southern Nevada; Gina Baxter, the mother of a child diagnosed with autism; Dr. Patricia Wright, National Director of Autism Services for Easter Seals; and myself.

But that’s not all. Steven Jackson, a running back for the St. Louis Rams, is from Las Vegas and he spoke, too. The Easter Seals Southern Nevada Web site describes Jackson like this:

Steven Jackson is a familiar name at Easter Seals Southern Nevada. Last year, he hosted a spectacular fashion show, golf tournament, and children’s football clinic to benefit Easter Seals Southern Nevada.

The stories told by those speakers in Las Vegas inspired hope for a brighter future for those living with autism. I believe things will be great in 2008!

Super Tuesday, autism, and secret ballots

by Beth Finke

Tomorrow’s Super Tuesday! If you live in one of the states holding a primary, you might want to take a last-minute look at what the candidates have to say about autism before you duck into the voting booth.

In November, Katy Beh Neas blogged about autism being an issue in the presidential campaign and provides links to the candidates and their autism platforms. 

The 2008 Presidential Election Action Center has some helpful information, too. Created by the American Association of People with Disabilities (AAPD), the site features each candidate’s record on autism and other disabilities during this election cycle.

A personal note: I lost the right to vote privately and anonymously in 1985. That’s the year I lost my sight.

After that, I needed my husband to squeeze into a voting booth with my Seeing Eye dog and me to read the candidates aloud. I’d tell Mike who I wanted, he’d help me punch the right candidate, and everyone in the place knew who I was voting for.

Not anymore!

Thanks to the hard work of disability advocates like the AAPD and Easter Seals, polling places are now required to provide voting machines with speech. Tomorrow, Hanni (my Seeing Eye dog) will lead me to our polling place; I’ll put on headphones, listen to the choices, and punch a button on the keyboard — all by myself.

Wondering who I’ll vote for? Ha! Don’t even bother asking. I’m not telling. I don’t have to anymore!

Lose the training wheels — bike therapy

by Beth Finke

In my other life, I’m a writing teacher. I teach a weekly memoir-writing class for senior citizens in Chicago, and I give seminars on writing at libraries and conferences.

After a writing seminar at the Oak Park Public Library last week, a teenager came up to chat.

“I have a poem published on the internet,” she said.

I was impressed, but I was busy signing books. I didn’t have time to ask what the poem was about. “Send me the link,” I told her.

She did.

Her poem is published on a Web site called Lose the Training Wheels.

It turns out the teenager is an identical twin. She and her sister were born prematurely, though, and the teen writer participated in a bike therapy program at Easter Seals DuPage.

Lose the Training Wheels describes the poem — and the Easter Seals DuPage program — like this:

The author is Jessica, who at age 11, attended an adapted bike camp sponsored by Easter Seals DuPage in 2003, (a suburb west of Chicago).

When a child is able to master riding a bicycle — and without those dreaded training wheels — the benefits become instantly evident. The child smiles, and the child desires to get onto the bike to ride around. Self-esteem experiences perhaps an exhilarating lifetime high. Humiliation is vanquished.

Here’s Jessica’s poem. I think it’s great:

Learning to Ride — A Poem About Bike Riding
By Jessica

Unconquerable, undefeated, and proud
The wheels turning,
People whizzing past my face,
I wanted to learn
I wanted to ride
But I just couldn’t

My pink bike with “balance wheels”
People laughing,
As I felt hurt down deep within

I tried and tried but fell
It was frustrating
But I got back up again and tried again and again

Finally, the pink bike — the “balance wheels” gone forever
I felt like a mighty king at the top of a mountain,
Who was now unconquerable, undefeated, and proud.

I’d be proud, too. Ride on, Jessica!

Help us reach 200 people on Facebook by tomorrow!

by Beth Finke

The clock is ticking …

We’re trying to get at least 200 people to join our “Shine a light on autism” Cause on Facebook and make a $10 donation before 2:00 p.m. Central time tomorrow, January 30th.

Do you have a Facebook account? If not, sign up! If so, join Easter Seals “Shine a light on autism” Facebook Cause.

This is a rare opportunity … the Case Foundation has paired up with Facebook for the Causes Giving Challenge. They’re giving away $1,000 a day to the Cause with the largest number of unique donors per day, and $50,000 to the cause with the most donors overall!

We’re going for the daily $1,000 grant and we’ve designated January 30th as Easter Seals’ Facebook day of giving to support families living with autism. We want everyone to know that autism is treatable, and there is help and hope available — today.

Please join the Cause, make a donation and spread the word!

Thanks for doing all you can to help.

Book review: Jack Gantos’ “Joey Pigza” books

by Katy Beh Neas

I read two of Jack Gantos’ Joey Pigza books: Joey Pigza Swallowed the Key and What Would Joey Do? The books are written from the perspective of an elementary age boy, Joey Pigza, who has Attention Deficit/Hyperactivity Disorder (ADHD).

These books are well-written, and Joey is a frightfully likeable character. Still, these books were real downers to me. In What Would Joey Do?, Joey’s grandmother tells him she won’t die until he has a real friend. Joey doesn’t seem to be terribly upset that he doesn’t have any friends, but it’s really important to his grandmother. He ends up pretending to have a friend and his grandmother dies the next day. Through all this, Joey’s parents aren’t really much help to him.

I think the book’s message about needing friends is extremely relevant to today’s kids, but oy! Did his grandmother have to die?

In Joey Pigza Swallowed the Key, Joey doesn’t seem to be able to manage his own behavior and the school and his mom are unable to meet his needs. The book has incredibly poignant descriptions of “special education” that takes place down in the boiler room away from the rest of the kids.

I’d recommend these books for people trying to get into the head of someone with ADHD, but I’d keep them away from kids with ADHD — especially those who are having difficulty at school or with peers. Perhaps it’s just my perspective as a parent of a daughter (who doesn’t have disabilities) who is having a difficult time with her peers. These books portray a brave boy with no real supports and none on the horizon.

We should hope for better for any child.

Pop the cork… and the bubble wrap! Autism wallpaper wins!

by Beth Finke

Happy Bubble Wrap Appreciation Day, everyone! As if the invention of bubble wrap 
alone isn’t enough reason to celebrate, we also have outstanding news about this year’s Bubble Wrap® Competition for Young Inventors.

Yes! Get out your dancing shoes! Sealed Air Corporation announced the big Bubble Wrap Invention winners today, and Hannah Haas was the grand prize winner!

You remember Hannah, don’t you? She’s the 13-year old from Charlotte, N.C. I blogged about last month. Hannah designed sensory wallpaper that she describes like this:

Wallpaper designed to engage and stimulate children with autism through the combination of a textured bubble surface containing large and small bubbles, and a calming, blue wallpaper background.

You can watch a video about Hannah’s invention via MPG or Flash.

I just listened to the Flash version and was happy to hear that Hannah’s design includes a plan to replace the wallpaper with new sheets of bubble wrap once all the bubbles are popped. She thought of everything. No wonder she won!

Congrats, Hannah. Time to pop the cork — and the bubble wrap!

Will my child have autism?

by Patricia Wright

I’m at an age where many of my friends are making decisions about whether to have children. None of my friends have children diagnosed with autism, but they know about my interest and expertise in the subject. So they ask me if there is a way to prevent their child from having autism. 

My answer has always been simple. “Not to my knowledge.”

Now that the University of Washington has launched the first autism prevention study, my answer may change.

The research project will study 200 infants with siblings who have autism and assess whether early intervention for this high-risk group can prevent the development of autism.

The 200 infants participating in this research will be watched closely — not only by the researchers, but by many concerned parents. Parents interested in preventing autism will be anxiously awaiting the results. Me, too.

Book review: Nancy Wiseman’s “Could It Be Autism?”

by Beth Finke

When it comes to treating autism, the earlier the intervention the better. That’s why I like Nancy D. Wiseman’s Could It Be Autism?: A Parent’s Guide to the First Signs and Next Steps so much. Her message is simple: if parents are concerned about a child’s social, emotional or behavioral development, they should look for answers now.

Not later.

Not in a few months.

Now.

Wiseman is the mother of an 11-year-old with autism. She is also the founder and president of a non-profit organization dedicated to educating parents and pediatric professionals about the early warning signs of autism.

Autism is a lifelong condition, but early action can make it less devastating. Wiseman’s book encourages concerned parents to go with their guts, act on instinct and get a diagnosis.

Karate kids with autism

by Beth Finke

Okay, Monday I blogged about yoga and autism; Wednesday I blogged about surfing and autism. So heck, why not finish my trilogy with a blog about… karate and autism.

A friend on our Easter Seals MySpace page teaches karate in Chattanooga, Tenn. Sensei Green is no ordinary karate instructor, though: he teaches kids with special needs.

Among his students are two boys with autism who compete in the non-handicap division of the USA-N.K.F. (National Karate Federation) Karate Nationals. That is serious karate – the real deal.

The results of some Google-ing tell me there’s a children’s hospital in California that uses karate to teach social skills to children with autism.

I also found a blog post about a boy with autism who liked karate class at first, but then later, not so much:

This last week, we knew after two or three minutes that it was going to be a long class. Ds had no focus whatsoever, spinning, playing with his hands, and tilting his head the entire time. The sensei must have picked up on it, and decided it was better to let it go, but it never improved. He barely tried what they were instructed to do, and he was always backwards. His eyes were so vacant, and he seemed so out of it, for lack of a better word.

So, maybe it’s just like yoga and surfing. They appeal to some of the people all of the time, all of the people some of the time.

As for me, it’s Friday, the weekend is looming, and all this talk of surfing and karate is wearing me out. It’s supposed to be cold this weekend, maybe I’ll stay home and meditate.

You know, open my mind more to yoga. “Ohm… “