Autism-friendly screening: Harry Potter

If only we lived in England! Among all the buzz I heard this weekend about the new Harry Potter book I happened to catch wind of a theatre in Nottingham featuring a special autism-friendly screening.

“Harry Potter and the Order of the Phoenix” will air in a special “autism-friendly” setting at Broadway Cinema in Nottingham today at 1:00 p.m.

Sponsored by the Prince of Wales Arts & Kids Foundation, the film will be shown at a lower volume and with the lights turned on in the theatre during the movie. Broadway Cinema assures guests that they can move around and make noise during the show without being reprimanded.

If special screenings like this go on in the U.S., I’d love to hear about them.


Acting normal in a world that thinks you’re not

This week’s episode of This American Life, features stories about the developmentally disabled and people with special needs. One is Johnathan, a man on the autism spectrum. The program originally aired on National Public Radio in 2002 and is being replayed this weekend.

    Stories about people who were told that they’re different. Some of them were comfortable with it. Some didn’t understand it. And some understood, but didn’t like it.

As host Ira Glass says in the introduction, this program has “voices and stories that usually do not make it to the radio.”

Give it a listen this weekend, or listen online anytime.


Book review: Roy Richard Grinker’s “Unstrange Minds”

Read more about Unstrange Minds at Amazon

Recently I read the book Unstrange Minds:  Remapping the World of Autism by Roy Richard Grinker. Mr. Grinker has a daughter with autism. In this book he skillfully combines the story of his family’s journey through autism with comparisons of autism awareness, treatment and struggles of families in other countries around the world. I found the descriptions of how other cultures view and treat autism to be enlightening. It appears that even with the struggles we continue to have in the United States with funding, research, treatment models and access to interventions, we are much more fortunate than many of our peers in other cultures.

When I first learned of this book, I heard that the author denied that there is an autism epidemic. I was ready to read this book with a very critical eye. I was pleased to see that he is not denying that there is an unprecedented increase in the diagnosis of autism. He is discussing the history of the diagnosis and the evolution of our own country in the recognition and acceptance of this diagnosis. I found this book thought-provoking and would recommend it to those who enjoy learning of other families’ triumphs and struggles, and who are curious about how the rest of the world views autism.


Knock autism out of the park

As I mentioned in my previous blog, I had nothing much to do this summer, except for relaxation and spending time with family. However, that all changed in an instant when I was invited by Easter Seals North Texas to come back to Dallas to support another fundraiser.

Since I like high stakes and competition, I knew what was in store for me. It was the All-Star break in Major League Baseball and on the eve of the 78th Annual All-Star game that took place in San Francisco (another one of the cities I’ve visited), the Home Run Derby was held. Eight of the best major league home run hitters compete for the title and prestige of who can hit the most balls out of the stadium.

When I first arrived in Dallas, I ran into Will Johnson, Marketing Director at Easter Seals North Texas, along with the familiar faces I’ve seen in my previous visit. They all welcomed me with open arms. Last time when I visited, it was Autism Awareness Month (April) and I was the focal point of what Easter Seals would become in the future. In this event, however, it was a Home Run Derby challenge that was open to the public where the people picked the batter they thought would win it all. I wanted to participate in this pool as well, but I was told that I was there to deliver my speech, that’s it. It was a good thing that I didn’t participate because the batter who I thought would win got eliminated in the first round. Shows how much I know.

After the eight batters swung in the first round, they showed my video on the JumboTron in the outfield of the ballpark. In other words, my story was publicized to Dallas in some way. It was a nice display to the public.

After the second round (the remaining four batters hit), it was time to deliver my speech to the people at the ballpark. I spoke on how Easter Seals changed my life and how it can bring hope into this world.

Overall, it was a great trip. I got to reconnect with old friends and meet new people, including Miss Wheelchair Texas 2007 Jackie Bartels. Since we are heading into the second half of the baseball season, I encourage you to step up to the plate and hit a home run for Easter Seals. KNOCK AUTISM OUT OF THE PARK!


A new partnership and a new model of service

Lee Grossman is the President and Chief Executive Officer of the Autism Society of America (ASA). We’re happy to have Lee here as a guest blogger to celebrate the partnership between the ASA and Easter Seals!
– Jim Williams

A new partnership and a new model of service

by Lee Grossman

I’d like to echo Jim Williams’ sentiments. Bringing the Autism Society of America’s (ASA) advocacy and partners together with Easter Seals’ experience and scope of services will be an excellent fit.

For readers who are not here in Phoenix, let me tell you a little about the 38th ASA National Conference. This year we welcome nearly 1,500 attendees. Fifty are adults on the autism spectrum. About half are family members of someone on the spectrum and half are professionals dedicated to helping our community. Everyone is here to discuss ways to handle this burgeoning health crisis, and how to support families.

We’re excited about this partnership with Easter Seals. With it, we’re creating a new model of service that will better address the needs of individuals with autism and their families.

Read Lee Grossman’s biography.


The P.L.A.Y. Project: our presentation at the ASA Conference

Hello from the Autism Society of America (ASA) 38th Annual Conference in Phoenix. There are over 1,500 people attending the conference this year. They include representatives from nine Easter Seals affiliates plus headquarters staff.

This conference is unique because the attendees include not just professionals working with people with autism, but also individuals with autism, their families and caregivers. Here, families can hear from researchers, learn about service providers and network with other families who have similar experiences  It’s one of the few places where you really get a sense of the inclusiveness of the ASA, a grassroots organization started by families over 40 years ago.

Yesterday, Julie Dorcey from Easter Seals Michigan, Rick Solomon, MD, founder of the P.L.A.Y. (Play and Language for Autistic Youngsters) Project and I presented our session, The P.L.A.Y. Project: A Cost Effective Intensive Intervention for Young Children with Autism Spectrum Disorders. There were about 100 attendees, from all types of backgrounds.

The P.L.A.Y. Project, based on the DIR (Developmental, Individual-Difference, Relationship-Based)/Floortime model of Stanley Greenspan, MD, is an intervention for young children up to 6 years old. Easter Seals has embraced the P.L.A.Y. Project for three basic reasons:

  • At about $4,000 per year, it’s one of the most affordable interventions for families. 
  • It’s a parent coaching, family empowerment model that’s provided in the child’s home. Parents are coached in how to interact in a way that draws interactions from their child and begins to help them open and close “circles of communication.”
  • From a professional perspective, the training is provided in such a way that it creates competent, consistently high-quality home consultants.

There are currently 19 Easter Seals P.L.A.Y. Projects, with five more planned to start in the coming months.

Next year’s ASA conference is going to be in Florida.  I look forward to attending it, meeting new people and connecting with old friends.  I encourage you to consider attending as well!


Accessible accommodations at the ASA Conference

The hotel industry is customer-focused by nature, but here in Scottsdale, Arizona, the Westin Kierland Resort and Spa has taken hospitality to a new level in hosting the Autism Society of America’s (ASA) 38th Annual Conference.

ASA and Westin staff began laying the groundwork for the conference last fall, with much discussion on how to make the resort an especially comfortable and inviting place for people with Autism Spectrum Disorders and their families.

“It is very important to us that everyone feel welcome here. We wanted to minimize any guest concerns by paying attention to the details that would allow everyone to really enjoy themselves,” says Conference Services Manager Stacie Stephenson.

Some of those details have included staff sensitivity trainings attended by a representative from every department — so information could then be relayed to every person working in any capacity during the conference.

A waterfall in the lobby has been turned off for the duration of the conference because it might be distracting to individuals on the spectrum.

Resort chefs spent a great deal of time shopping for and preparing menus to guarantee that individuals with sensitivities to gluten and casein have a wide variety of food choices in each of the resort’s eight restaurants. The room service, box lunches and kid’s menus have also been modified to provide gluten-free, casein-free options.

Additional signage serves to make the sprawling accommodations especially easy to use. And extra staff is on-hand to provide assistance to any conference attendees needing a little extra time and attention.

“This is a positive learning experience for everyone involved, and our staff are truly benefiting as much as our patrons,” says Public Relations and Marketing Director Christie Noble.

Many people with autism and their families live in a society that may not understand or be accustomed to their needs. This year’s ASA Conference is themed Together a Brighter Tomorrow. The staff members here at the Westin Kierland have proven to be a great example of what we can all hope for.

Read Julie Dorcey’s biography.


Easter Seals partners with the Autism Society of America

Today is a very important day for people with autism and their families as well as for Easter Seals and the Autism Society of America (ASA). At the annual ASA conference here in Phoenix, we announced a formal partnership between the two organizations. Working together, we believe that we can advance the cause of research and treatment for those with autism much more effectively than if we were working separately.

I had the opportunity to address the attendees at the conference this morning, and the response to our partnership was warm and enthusiastic. There was a real buzz in the room as we talked about the possibilities and opportunities that will be generated by our working closely together.

So stay tuned as this partnership takes hold. I expect great things to happen both in the short term and the long term as a result. In the meantime, you can learn more here about the nature of the partnership and what we expect to accomplish as a result of these two strong organizations joining hands.


Inclusion and “All Kids Can”

Ever since my memoir Long Time, No See was published I’ve been asked to guest-lecture for college classes. I usually talk about writing, about the assistive technology I use to write, or simply about what it’s like to live with a disability.

When I speak to the teacher education programs at Elmhurst College this Thursday, though, I’ll be talking about something a little different. I’ll lecture on what it’s like to be a parent of a child with a disability.

The students I talk to on Thursday are studying to be general education teachers. As part of their curriculum they are required to take one — just one — course in special education.

Considering that more than 95 percent of students with autism and other disabilities receive some or all of their education in regular classrooms, can one special education course for future teachers be enough?

This is where All Kids Can helps. Created by the CVS/pharmacy Charitable Trust, All Kids Can is a five-year, $25 million commitment to making life easier for children with disabilities. Through this signature program, CVS and the Trust help non-profit organizations like Easter Seals raise awareness in schools and in local communities about the importance of inclusion. In 2007, $350,000 in All Kids Can Fund grants went to support Easter Seals affiliates across the country.

I know that the general education students I’ll be speaking to on Thursday will benefit from hearing how inclusion played a major role in the life of my son, who has severe disabilities. But I’m only one woman. I can’t do it alone. That’s why I’m grateful to CVS for funding programs to promote the awareness of inclusion and its importance to children with disabilities.


An update on Maurice’s summer

It’s been a while since I last posted a blog to the Easter Seals and Autism Web site. I haven’t really traveled outside of Illinois lately, but I will soon. However, I am excited about the changes at Easter Seals and how that will affect many Chicagoans (and Americans as well).

It wasn’t until the last week before summer break — Father’s Day to be exact — that I participated in a 5K Run and Walk to raise awareness about autism. I was fortunate to reunite with the people who work for Easter Seals Joliet and they were thrilled to have me and the family come a long way to join them. At first, I was nervous because I haven’t sprinted in a long time; I feared that I was out of shape and couldn’t keep up with the others. But fortunately, I did not dare to run; I contributed by walking with the other walkers and help spread the message to the town that the children need our help today. Our mission was to gather everyone up in the community and work hard to reach the ultimate goal. In the end, everyone has reached their goal.

Another great thing I’ve discovered: I’m beginning to see the new Easter Seals Metropolitan Chicago Therapeutic Day School and Center for Autism Research come to form. We just had the groundbreaking ceremony this past October — my, how time flies! The construction people have been working like clockwork putting the new school together. One week, I just saw pictures of the day-by-day construction on the Easter Seals Metropolitan Chicago Web site. Then one week later, they began building up from the ground, up to the second floor of the building. We have to give the construction workers credit for doing a job well done. This is already a start of a greater future for Easter Seals in Chicago and the nation.

As for traveling, I’ll be back to it soon! My next trip is back to Dallas, Texas for a fundraiser for Easter Seals in Greater Dallas, so I’ll hope to report to you about it soon! I wish you all a great summer!