Inaccessible Hospitality: “What An Incredible Conference…That I Had To Leave Early”

by Ben Trockman

There I was, lying on the pullout couch less than 2 feet above the floor, where my mother and my friend, Kathy, were strenuously bending over to pull up my pants, put on my shirt, preparing me for PRWeek.

My mom is a trooper. At 62 years old, she’s made countless trips out of town with me – for work, physical therapy, and the occasional vacation – and she’s always been my “number one helper.” But, lifting and rolling my 225-pound body is more than a one mama job. We are lucky to have Kathy.

There I am, lying on a pullout couch and in the Hoyer lift

Getting in and out of bed, or in this case a pullout couch, could be easier. Unfortunately, all the hotels in Chicago we contacted have beds on “platforms,” meaning there is no space between the bottom of the bed and the floor. Why is that important? Well, there is this piece of equipment – a Hoyer lift – that can assist my helpers getting me in and out of bed. Quite frankly, it’s the only way I get out of bed.

Because we couldn’t find a hotel that simply just had space underneath their beds, where the legs of the Hoyer lift could slide under – lifting and dropping me above the bed – I was stuck on the pullout couch.

And, as I mentioned, the pullout couch is literally only 2 feet above the ground. Not. Easy.

My mom was already fighting a strained back, this inconvenience certainly didn’t help – our four-night trip to Chicago, which included two days of a PRWeek conference, a night out with my coworkers, capped off by my first trip to an improv comedy show. It was going to be a great trip!

But, I had to leave early. It was just too much.

I have a great deal of empathy for my caregivers. Knowing that my mom and Kathy were straining so hard literally just to roll me over to get me ready for the conference, we didn’t have the energy to continue for any time after the conference. No dinner with my coworkers. No comedy show.

It was a great conference. I believe the Easterseals + Change for Balance duo gave one of the better presentations, and I made a number of new friends, but the experience was overshadowed by the inaccessibility of the hotel, and the fact that I had to skip time with my colleagues to go home.

Look, I’m one of the lucky ones, and I’m well aware. I have a good paying job, which allows me to afford bringing Kathy along. I have a supportive mom, who will travel with me when I need help. But, even this crew of experienced travelers and healthcare workers couldn’t take it any longer – we headed home.

Even my mother, one of the toughest and “let’s get this done go-getters” made a comment: “It’s no wonder many people with disabilities choose not to travel. This is really tough.”

And that is the reality. Traveling is really tough. Hotels don’t design with full accessibility in mind and airlines are not accessible for people in wheelchairs. Thousands of people with disabilities choose not to risk the travel, whether for work or for vacation, and stay-at-home where it’s safe, where it’s accessible.

And that’s not right. That’s not fair. It’s not accessible. But it’s the reality.

So, what will we do? Do we stay quiet, stay-at-home, and on the occasional burst of courage take a work or personal trip?

I don’t think so. Let’s get loud. Let’s rally for more accessible hotels and airlines. Let’s rally for accessibility.

I’ll keep on sharing my stories and I’ll keep being “loud.” I hope you’ll keep following.

The Federal Website for the Americans with Disabilities Act Got an Upgrade

by Beth Finke

So much has happened during this holiday season that you may have missed this bit of good news — the U.S. Department of Justice announced it has launched a new and improved version of the Americans with Disabilities Act website.

I just gave the new ada.gov site a look –okay, a listen! –and the updated version of the website is really easy to get through and understand: it’s written in plain language, the navigation tools are easy to use, and the speech software on my talking computer read it all beautifully. The new site was designed to work well with mobile devices and features links that answer questions about everything from service animals to accessible polling places.

Check it out: visit ada.gov or call the Justice Department’s toll-free ADA information line at 1-800-514-0301 (voice) or 1-833-610-1264 (TDD).

You Might Find Something Accessible to Be Thankful for Within this List

by Alicia Krage

This is my favorite time of year. I love reflecting on the year and recognizing what I’m thankful for. And then, once Thanksgiving is over, the days start leading up to New Year’s Eve, which symbolizes the closing of a chapter and the beginning of a new one. For me, a new year feels like a clean slate and a fresh start, an opportunity to look at it from a brand-new lens.

I started 2022 feeling cautiously optimistic. I wrote a post like this before last year, focusing on the pandemic. It was very therapeutic to write it all down — to think to myself, “Okay, it was a rough year, but I’m going to sit here and I’m going to find those silver linings.”

This year feels like a breath of fresh air compared to the last two. It wasn’t perfect — no year ever is — but sitting down and finding its silver linings, expressing what I’m thankful for, comes much, much easier in 2022. So here is my reflection in all its glory!

1. I’m thankful for my friendships. I wrote a post about this recently but truly, I can’t stress this enough. The first thing that comes to mind when I think of this year are my friends, especially the virtual ones. My friends are spread far and wide, and this year I strengthened so many connections and found routines in the day-to-day that really helped with my mental health. I had monthly movie nights with friends. I had virtual coffee dates on Saturday mornings. I had SharePlay sessions with a friend every time an album came out by an artist that we were both crazy for. These small, seemingly insignificant moments got me through some really hard times, simply because they were things that I was able to look forward to.
2. I’ve grown much more confident in my travel abilities. It’s been six months since my MetroLift experience to the airport and sometimes I still catch myself thinking about it. A year ago, there’s no way I would’ve felt confident enough to try that. I am an anxious traveler, and a year ago, I would’ve let that anxiety get the better of me and insist that we come up with a travel plan that does not involve relying on para-transit, maybe asking a friend to drive me instead. But now? I trusted that Juan knew the system, and I trusted myself that I was independent enough and courageous enough to try something new. And so I did it, and it went well, and I felt liberated enough to write about it.
3. I stayed in Houston for a month and it was a success! Juan and I have been in a long-distance relationship for so long that we knew that one of us would eventually need to relocate. I’d already fallen in love with the Houston area, but I wanted to make sure he and I could live under the same roof before making the big decision. During that month-long visit we had a lot of open and honest conversations about our relationship, cohabitation, and our expectations. And I did a lot of networking, too. I checked out the transportation system, the way strangers treated me as a person with a disability, and other things like that gave me a glimpse of what my life in Houston might be like. And I loved that life.
4. I’ve grown grateful to people who take the time to provide equal opportunities for blind and visually-impaired individuals, such as the creators of audiovault.net. This site provides free TV shows and movies guaranteed to be audio described. I prefer this over going to movie theaters — I’ve had far too many bad experiences at movie theaters (sometimes giving us the wrong audio description device, other times giving us a device that didn’t work and needed to be fixed). I’ve watched so, so many more movies this past year knowing I can count on audiovault to provide us with access to accessible content.
5. I’m thankful for my family’s efforts to include me. Example: during season 41 of the TV show Survivor, CBS started providing audio description. That means that every week now when I watch survivor with my parents, my mom turns on the audio description. That way, she no longer has to describe and can focus a bit more on the show, and I know precisely what’s going on in the show without needing extra help from family members.
6. Thanks in large part to the YouTube channel “Yoga with Adriene,” I now do yoga every day. I occasionally turn to Sara Beth Yoga. Both of these channels do a great job at describing yoga poses and, if you aren’t familiar with the practice, have beginner videos as well. Therapists have recommended yoga to me for anxiety, and ever since I started doing yoga every day with my mom, it has become part of my day and has done wonders for my mental health.
7. Lastly, I discovered a good (and very accessible) journaling app called Day One. I wanted to get back into journaling. This app allows me to journal whenever and wherever I am, and I love how it feels to take time to write down my feelings.

Gratitude is something I constantly work on. On bad days, I could always have the mindset that the entire day was awful, and “at least there’s tomorrow.” I’m learning now that there’s always something to be thankful for, even if it takes some time. I think that’s something we should all strive for.

I hope you all have a happy Thanksgiving, enjoy the rest of 2022, and have a hopeful, positive opening to 2023. Happy holidays!

It’s Not Political, It’s Access: The Disability Community Supports Easier Voting Access

by Ben Trockman

While selfishly I’ve always thought people with disabilities – the community of which I identify – were more “thoughtful,” specifically in our opinion of access, now I can proclaim our thoughtfulness as fact!

As a Project Manager for Change for Balance, a boutique strategic communications company, and as a self-proclaimed “connector,” I brought together our client, Easterseals, with my friends at AARP with the idea of commissioning a voter survey among our two shared constituencies – people with disabilities and older Americans aged 50+.

And guess what? We did it! You can check out the full results of the Easterseals and AARP survey here.

But, if you’ll allow me to get straight to the results this “connector” found interesting, stick with me.

With strong bipartisan support – I just knew this would be true – people with disabilities aged 50+ support expanding voting access, including voting by mail, voting absentee, and ballot drop boxes.

While much of the media pits the major parties at odds on many issues, fundamental access to voting is a united issue for people with disabilities 50 and older. For a very diverse and intersectional population, that’s nice. Simply put, it’s not political – it’s all about access!

Tony Coelho, the esteemed former United States Congressman and primary sponsor of the Americans with Disabilities Act, puts it perfectly “Voting access is not politically motivated as it is supported by Democrats and Republicans alike. In that regard it’s like passing of the Americans with Disabilities Act.”

Another interesting result – and this applies mostly to in-person voting – is when given a list of multiple accommodation options, 43% of respondents say they utilize an accommodation when voting.

I’m not good with math, but 43% of what is expected to be 30 million people with disabilities 50+ voting in the midterm election is a lot!  Those who require just a little extra help will cast their ballot.

While this survey reveals many other important issues to the disability and older American groups, including inflation and other pocketbook issues, a resounding number of people just want access.

Unfortunately, as discovered in previous conversations with my friends at Rutgers University, it’s likely there are a number of people with disabilities who don’t participate in the elections because of accessibility barriers. “If people with disabilities voted at the same rate as everyone else, there would be 1.75 million more voters,” said Lisa Schur, professor, and co-director of the Rutgers Program for Disability Research.

We know it, Rutgers reinforces it – at the end of the day, the disability community wants greater access, from restaurants to airlines to casting our ballots. And, when we have it, we damn sure will participate!

Two Members of Congress are Putting a Spotlight on Accessibility

by Beth Finke

Here’s why it’s cool to have a Senator who uses a wheelchair to get around: she’s an accessibility expert! Tammy Duckworth, our Senator here in Illinois, served in Iraq and lost both legs when a rocket-propelled grenade struck the helicopter she was co-piloting in 2004. After she won the 2017 election for Senator of the State of Illinois, an article in the Chicago Tribune pointed out that running a Senate campaign involves lots of travel and complicated logistics. From the article:

Duckworth said she and her staff have a pre-event checklist to make sure the site is up to their standards — and that means making sure even the bathrooms are wheelchair accessible.

“I don’t go to any place that isn’t accessible even though I have artificial legs that I can walk in; it’s on principle,” she said. “If someone in a wheelchair can’t get in it, I’m not going to do an event there because just because I can get in there doesn’t mean somebody else can.”

The article said that during her campaign Duckworth often heard from voters who question her ability to serve. A question about using a wheelchair in public during the campaign came up when she first ran for Congress. “I’m not ashamed I’m in a wheelchair. I earned this wheelchair,” she said. “I’ve always insisted it’s not something that we hide.”

A seasoned member of Congress now, Senator Duckworth joined Representative Sarbanes of Maryland last month to introduce the Websites and Software Applications Accessibility Act (S. 4998 , H.R. 9021)) in both houses of Congress. The bill will require employers, state and local governments, and private businesses to make their websites and applications accessible.

Much has been made about how people with disabilities benefitted from digital access during the COVID pandemic, but casual conversations I’ve had with people with visual impairments tell me how frustrated they’ve been with technology, the high number of web sites that are not easy to use if relying on speech software and the hours they’ve wasted trying to make it work.

I am blind, and my husband Mike is sighted. During the pandemic Mike has had to take over much of the on-line ordering we do, the forms we are asked to fill out on line, and the online streaming we do. I get a lot of messages in my in box about plays and concerts and lectures that are available on line free of charge, but when I give that a try, the links and buttons are not accessible – frustrating!

If passed, this new legislation will make it clear that the Americans with Disabilities Act applies to websites and applications. I already know that my Senator will be voting in favor of the bill — she’s the one who introduced it to the Senate! Now it’s time for me to take action and find out who my House member is and contact them. You can do the same by linking to the official U.S. House of Representatives web site.

What I’ve Learned from Working Alongside My Colleagues with Disabilities

by Team Easterseals

This blog was also published by the U.S. Chamber of Commerce.

Written by Roddy Tabatabai.

As co-founder and partner at Change for Balance, a full-service strategic communications and production agency on a life-long journey to change this world for the better, it has always been my goal to foster a diverse and inclusive work environment.

My passion for building equity and allyship across our communities is a personal one. While non-disabled, I am an ally and advocate, and I am a person of color as my parents emigrated from Iran years ago. I understand the extreme value of what an underrepresented perspective can bring to the table and how critical it is to create workplaces where everyone feels a sense of belonging. Plus, in my work as a filmmaker, I’ve been privileged to travel the world to showcase stories that capture people’s hearts and minds – from climate action to animal welfare, human rights and yes, disability inclusion.

When building our workgroup at Change for Balance, we asked ourselves, what community is not properly represented in the workforce? Who is not getting a seat at the table? Who’s missing? After learning that the largest minority group in the United States are the 61+ million Americans living with disabilities, I was shocked to learn that the employment rate for people with disabilities was so extremely low. Thus, our company took on its next mission – HIRE MORE PEOPLE WITH DISABILITIES! And we did!

Straight out of the gate, the first thing I learned working alongside my colleagues with disabilities is that they are extremely talented problem-solvers with valuable perspectives. People with disabilities are constantly seeking out ways to perform tasks which others take for granted, and that outside-the-box style of thinking is essential to growing, improving performance, and elevating our work — companywide!

It is a privilege to work alongside my colleagues with disabilities. The work ethic that comes from the disabled community is unmatched. In addition to enhancing our work at Change for Balance, hiring people with disabilities at our company has also brought my own personal work ethic to new heights as the disabled community encourages me to often think differently, opening my eyes to an entirely different perspective I hadn’t previously encountered.

The pool of talented professionals with disabilities doesn’t stop at Change for Balance – they are everywhere and in all professions. In fact, CFB recently worked with a cast and crew of 70% people with disabilities to produce a nationwide PSA series for Easterseals. We even hired a stylist with a disability!

We realize disability inclusion doesn’t stop at our doors; we can collaborate, hire, and contract with talented professionals with disabilities from across the United States and beyond. The practice of including people in front of and behind the camera will be a priority of CFB now, and in the future, whether we are working on Easterseals content or elsewhere!

My advice to any business or work group looking to take their company to new heights:  hire more people with disabilities! They will get the job done.

Working for Companies Who Prioritize Disability Inclusion Has Made All the Difference in My Career

by Ben Trockman

This blog was also published by the U.S. Chamber of Commerce.

Having an employer that believes in you – the whole you – is incredibly important for success.

When I suffered a spinal cord injury 15 years ago, I had a tremendous lack of confidence, a trait I know I share with many people with and without disabilities. I didn’t know it at the time, but after graduating college a few years after sustaining my disability, ready to enter the work world for the first time, I needed an additional support system. I needed someone to believe in me at the same time I was trying to believe in myself. What I didn’t know is that support system would be my employer.

In my “short” professional career of nine years, I’ve worked for two tremendous companies who have prioritized disability inclusion, and, in my opinion, it’s made a world of difference – not only just for me, but for all employees. When companies like Change for Balance prioritize inclusion and culture, the “trickle-down effect” is real. Everyone feels included, and deeper and more understanding friendships are formed.

Our partners at Change for Balance may not take all the credit for this, but by being inclusion-minded in our recruitment approach, the composition of our team, and even being thoughtful and strategic to ensure accessibility as we plan meetings and travels, our company is more compassionate, allowing each of us to become the most confident and strongest versions of ourselves.

As an employee, if you are “hitching your wagon” to an employer, I suggest other potential employees seek out a company like Change for Balance, a company who cares about culture and inclusion. No doubt you’ll have a more thoughtful company, but an even more successful career.

The same can be true of many of our clients who have prioritized hiring people with disabilities as part of their DEI&A practices.  Among them is Easterseals where Erin Hawley, a talented and accomplished influencer in the disability community, is on the national marketing team as its organization’s Communications and Digital Content Producer.  She brings an important and authentic perspective to initiatives on which Easterseals is focused in their mission to advance full equity, inclusion, and access to people with disabilities.

Here’s What You Don’t Know About Unemployment

by Team Easterseals

Crystal Odom-McKinney was named one of Chicago Defender’s Women of Excellence Honorees.

It’s hard not to notice the media’s attention on COVID-19 and its impact on employment. Since 9.6 million people lost their jobs in the U.S., it makes sense. However, very little spotlight is put on the 5.7 million workers ages 55 and up that lost their jobs during March and April of 2020 alone. Currently, older workers are 17 percent more likely to become unemployed than their slightly younger peers (AARP). Perhaps there is a sentiment that this issue only concerns matters of retirement. Some may believe that people entering retirement just need to be a little scrappier with their finances, but in the end, they’ll be okay. Crystal Odom-McKinney knows there’s more at stake than that.

Crystal Odom-McKinney is the National Director of the Senior Community Service Employment Program (SCSEP) at Easterseals. SCSEP is the largest federally funded program for older job seekers. After over 20 years managing nonprofit programs and working with underserved populations, Odom-McKinney has a deep understanding about how complex an issue like unemployment can be for communities that often don’t get as much attention. For her work, Odom-McKinney was recently honored at 15th Annual Chicago Defender Women of Excellence Awards, which celebrates local African American women who inspire others through their vision and leadership. During National Employ Older Workers Week, we thought it would be a great time ask a few questions about what this award means to her and why she is so passionate about the work that she does.

What does being recognized as a Chicago Defender Women of Excellence Honoree mean to you?

It is such an honor to be recognized for what I do both inside and outside of work.  I give all gratitude to my family, friends, and community, because this is what drives my purpose.  One of my favorite quotes by Mahatma Gandhi is “You may never know what results come of your actions, but if you do nothing, there will be no results.”

Why is it important that we recognize National Employ Older Workers Week?

Mature job seekers remain a vital part of the workforce. First, we are living longer healthier lives. We have more options now and retirement is just one. Many return to work to pursue different types of disciplines. That said, mature adults also bring unique value to companies and organizations with attributes such as reliability, dependability and a unique perspective due to life experiences. Employers need to be educated on the myths and truths about hiring workers.  For example, retraining or retaining mature workers may be more cost-effective than hiring and onboarding their younger counterparts.

Why are Senior Community Service Employment Program (SCSEP) services important to meet the needs of communities today?

I have many stories from the field where I’ve been told, “this program changed my life.”  But there is one powerful story about a job seeker who said this program saved her life. This particular SCSEP participant overcame obstacles like homelessness, unemployment, learning challenges with technology, ending an abusive toxic relationship, and seeking out support for her mental wellness.  On many occasions, she felt hopeless and that no one cared.  Since enrolling in the SCSEP program, opportunities opened in every way: she now has a home and steady income. She’s learning new skills, is comfortable using a computer, and has support on her mental wellness journey from years of being unheard.

And this is what it is all about. SCSEP is about bringing hope back to those who felt like every door was shut on them. It’s about providing opportunities and options for those who need that added support. It’s about bringing harmony to communities across the country through training opportunities at local organizations.  We’re sharing these stories with lawmakers in D.C. to have elected officials reach out to local businesses and encourage the employment of these job seekers. This is the magic of the SCSEP program and why it is so important!

Accessible Airlines: Maybe Never Felt So Good

by Ben Trockman

This post is a reaction to a Disability Scoop article about wheelchair accessibility and air travel. 

While a headline of “maybe” might not sound super exciting – it’s far better than a “no.”

Person by person, conversation by conversation, email by email – accessible airlines are coming.

10 years ago, after crafting a blog post with the passion and plan to make airlines more accessible for wheelchair users, and wielding a petition with thousands of signatures, my family and I took the 726-mile drive to Washington DC to meet with elected officials and the Department of Transportation (DOT).

With a wickedly connected Legislative Affairs Assistant from Easterseals – an organization I’ve become deeply acquainted with after serving as a Easterseals National Representative in 2012 – we had high hopes for our meetings. I was out to change the world of airline travel for thousands.

While I had a life-changing experience traversing the Capital, navigating our countries most historic office buildings, making my way up and down 110-year-old elevators, waiting anxiously outside those elected officials’ offices, and – the highlight of a lifetime – meeting the architect of the Americans with Disabilities Act, Tom Harkin – to say I left “the Hill” disappointed was an understatement.

I don’t get worked up often, but I distinctly recall having to hold back harsh words of frustration, while an official at the DOT – on speakerphone, mind you – told me all the reasons why a wheelchair on an airplane wouldn’t work. Money. Regulations. Excuses. All while her colleagues in the room looked at me with despair, realizing my sharply rising blood pressure after traveling halfway across the country for this meeting.

In 2012, it was clear to me that accessible airlines weren’t a priority. I got a “no.”

Luckily, there are fellow fighters and advocates out there. My friend, Michele Erwin, and crew at All Wheels Up (AWU) – the only organization in the world crash testing wheelchairs for commercial flights – and a boatload of advocates, who share the same passions I had while staring those DOT officials in the eyes – have accessible airlines a top priority and have pounded the pavement since I was in DC.

There has been a lot of progress. Wheelchair crash testing. More and more meetings with elected officials and airline representatives. There have been studies commissioned at multiple universities – and, with each of these examples – I’m just speaking about the work done by All Wheels Up!

Yes, I buried the lead with this story, but after 10 years of work, and now under the leadership of a fellow Hoosier at the Department of Transportation, and years of advocacy efforts – we are making progress! A hard “no” is now a “maybe,” and while it could be a few years for implementation, the very fact that Secretary Buttigieg is making statements using the terms “wheelchair users on airplanes” makes me teary-eyed with excitement.

While I certainly wasn’t the first to bring up the concept of a wheelchair spot on the airlines, and I only carried the torch for short amount of time, it is nonetheless exhilarating to read a “maybe” in the headlines.

“Maybe” someday I’ll fly to DC to advocate for another worthy cause. Maybe someday I’ll fly to LA to meet with my coworkers. Maybe, someday I’ll finally make my lifelong bucket list trip to Australia.

Disability Committee Twitter Reactions: Why Do People Choose Cruelty Over Understanding?

by Beth Finke

A couple of weeks ago, someone published a tweet making fun of Vice President Kamala Harris for introducing herself at a Disability Committee meeting by stating her pronouns and describing what she was wearing. The tweet comes with a link to a video so followers can hear for themselves: “I am Kamala Harris,” the vice president says. “My pronouns are she and her, and I am a woman sitting at the table wearing a blue suit.” The poster claimed it was “one of the weirdest things” they’d ever seen and said the video left them LOL=laughing out loud.

Disability advocates who responded to the tweet explained that the vice president was introducing herself to a Disability Committee, and that giving a description of her appearance like that is “accessibility protocol” for people who are blind or visually impaired.

A few followers responded with short replies like “Thanks, I hadn’t thought of that” and “Oh, that makes sense.” What was shocking was seeing how many of the loyal followers took their cue from the influencer and left rude comments about people who are blind or visually impaired — ridiculous replies like, “I wear glasses, do I count?” and “What if you’re color blind?”

Declaring something as “accessibility protocol” and the idea that people choose cruelty over understanding has left me pondering two questions:

1. What makes people be this mean?
2. Who decides what qualifies as “accessibility protocol”?

Pretty heady questions, eh? I had to do some research! If you ask me, we could have all the assistive technology and accessible protocol in the world, but if we can’t conquer the fear average people have about disability and address the assumptions they have about us, disability discrimination and ableism will never go away.

Philosopher Bertrand Russell said that fear is one of the main sources of cruelty, and that: “To conquer fear is the beginning of wisdom.” I don’t see enforcing “accessibility protocol” as a good way to conquer the fears people have about us – at its worse, it could leave people worrying about doing or saying the wrong thing and not engaging us at all.

Being blind or having another disability does mean we do some activities differently than someone without a disability, but “helper tools” can make nearly all activities possible. I am blind, and in the past year or so I’ve attended more and more events (live and virtual) where the speakers or participants are told to “self-describe” themselves before starting their presentations. You know, for the “benefit of people in the audience who have a visual impairment.” But asking people to describe what they look like can be awkward. It points out what people who are blind or have visual impairments are lacking.

I haven’t asked many of my friends who are blind what they think of self-describing. They might enjoy hearing people say what they look like, and if they do, that’s great. I’m not going to call them “weird” or make a joke about it just because it’s not something that personally benefits me.

As for the accessibility protocol itself, I’d like to have whoever it is who decides what accessibility protocol is to figure out who needs it, what situations come up where they need it, and think of ways to make changes less complicated. Hopefully, this way of implementing “accessibility protocol” will begin to build bridges.