“I’m a very valuable person”

The article below was featured in our July eNewsletter. We love sharing Easter Seals news, so if you’d like to receive our eNews every month, sign up here.

Like many young adults, Irene was struggling to find her way in the world. She yearned to be more independent, connect with others and find a satisfying job.

“I didn’t feel like I was going anywhere,” says Irene, who has Autism Spectrum Disorder. “I didn’t feel like I was so important.”

Irene turned to Easter Seals for guidance with defining her employment goals, developing her skills and searching for a job that suited her interests and abilities. Her persistence paid off when she was offered a position as an accounting clerk with a company that provides mobility products, wheelchair accessible vans and services for people with disabilities.

Now with renewed confidence, Irene is thriving in countless ways. Watch her movie and learn more about Easter Seals Workforce Development Services.

 

Take the disability etiquette challenge today

Take the Disability Etiquette Challenge!

Recent articles about disability etiquette in the US News & World Report and the Chicago Tribune provided awesome tips and expert advice for interacting with people in general, not just those who have disabilities. If everyone were to apply the Golden Rule, our world (middle school especially, yikes) would be immensely better.

For readers who want to take their understanding of disability etiquette one step further, I recommend the Easter Seals Disability Etiquette Challenge. This quiz was crafted by disability etiquette experts — you may just get stumped. The quiz uses everyday situations that those of us who don’t have disabilities might never think twice about.

Say you’re in line for the restroom at a sporting event. The wheelchair accessible stall opens up. No one in line appears to have a disability and you’re next up. Prior to taking the quiz, my natural instinct would be to go for it in hopes I can make it back in time for the halftime show. My reasoning came from observations of what I thought were social norms.

Well it looks like I got stumped! Warning: quiz question spoiler ahead.

Using the accessible stall is not a taboo, so long as you generally ask the line if anyone needs to use it. Our Easter Seals blog moderator Beth Finke was the expert for this particular question. She reminds us that disabilities may not always be immediately visible and says asking never hurts.

This is just one of the many questions in the quiz that challenges us to rethink some of our daily actions. Lessons learned from the quiz can be applied anywhere from basic conversation with a friend to an interaction with a stranger at the grocery store. It’s never too late to fix our bad habits and spread some knowledge.

When I ask the busy restroom line if anyone needs the accessible stall, each person in line will take notice. Some of them will even make use of my action the next time a situation like that comes up for them.

So go ahead, take the quiz and expand your disability etiquette expertise. I already gave you the answer to one question!

 

Let’s talk about character

What does character mean to you? To me it means following through on your obligation(s) after that initial motivation is gone. It’s an elusive trait — so easy to say it’s important to you and yet so difficult to put into practice.

In my first blog post, I used an Army saying: “Adapt and Overcome.” This is a large part of character. It’s the ability to face an ever-changing situation, stand your ground (dig in sometimes), overcome adversity and regain momentum.

Character is personified in someone like retired General Stan McChrystal. Here is a tough soldier who left the Army under controversy and great public scrutiny. He easily could have fallen by the wayside and lived the rest of his life collecting his pension and sitting on a corporate board. Instead, he stepped back into service because he continues to feel an obligation to those with whom he served. Somehow, he dug deep and rebuilt the motivation to serve those who had served him.

General McChrystal is doing many good things, but I particularly admire the difference he is making in the lives of veterans through his work on the Military and Veterans Affairs Council of JP Morgan Chase. He joined forces with them in 2011 and in just two years has played a big part in helping the company reach its goal of hiring 100,000 veterans in five years (they’re currently at 67,000 and counting).

Character is also exemplified at Easter Seals, which re-energized its efforts aimed at veterans that originally began in 1947. It was brought to the attention of senior leaders that suicide rates of veterans was increasing exponentially — and Easter Seals, as an organization dedicated to helping those facing barriers, asked what it could do beyond its current mission. Easter Seals examined its core competencies and looked at ways to bring those to the forefront.

Skilled at caregiving for civilians, Easter Seals pitched and won a contract with the Veterans Administration (V.A.) to provide caregiver training to families of our nation’s wounded.

In the past 18 months, Easter Seals has trained nearly 13,000 caregivers through this program. The benefit? This way, the veteran gets supported for by those closest to him or her, and the caregivers then qualify for the stipend provided by the V.A.

I encourage you to see what you can do in your community to stay motivated to your cause. There’s a whole section on Dixon Center’s web site called Toolkits and Training that should give you a good start.

 

Gamers — apply now for free assistive technology to help you play

AbleGamers Twitter Avatar: three hands raised, each with a different game controller. The text reads: Everybody Can Game

AbleGamers' Twitter Avatar

I can tell you firsthand: it can be very difficult to play video games when you can’t see! I know it can’t always be easy for gamers with other disabilities to play either. That’s why I was so happy to hear the AbleGamers Foundation announce Summer of Fun grants for people with disabilities who need assistive technology to aid their gaming. This summer they’re giving one-time grants for free gaming equipment — very cool!

AbleGamers is a non-profit organization, and a press release explains that most of their fundraising goes toward these Summer of Fun grants they’re offering:

“I’m absolutely ecstatic over our Summer of Fun initiative,” said Mark Barlet, President and Founder of the AbleGamers Charity. “These grants are the main reason we do our Pachinko for Charity and other fundraising events. We expect to receive thousands of requests and we will fill as many of them as funding allows.”

To be considered for a Summer of Fun grant program, you need to submit a request for equipment before August 1, 2013. Grant applications will then be reviewed by the AbleGamers board and given out to those who need the equipment the most.

After reading that Summer of Fun grants are available for all ages of gamers with Disabilities, I decided to go ahead an apply for a grant myself. I’m happy to report that the application form was very accessible: it asks you to let them know what sort of equipment might help you with your particular gaming needs, and it only took a few minutes for me to complete the form with my talking computer. So c’mon, gamers, give the grant a try: what have you got to lose?

 

Thanks to this internship program for students with disabilities

DC Intern Jennifer Lee at the Washington Mall

Intern Jennifer Lee overlooking the Mall, Washington D.C.

Every year the American Association of People with Disabilities (AAPD) runs a summer internship program that brings students with disabilities from across the country to our nation’s capital to work in government, non-profit, and private sectors. This summer we at Easter Seals Headquarters are fortunate to have one of the AAPD interns working with us in our office in Washington, D.C.

Jennifer Louise Lee is an undergraduate at Brandeis University and is pursuing a double major in Health, Science, Society and Policy and American Studies. Jennifer is a Member of the Student Sexuality Information Service at Brandeis and a peer leader for various disability organizations there, too. She hopes to take her advocating skills to the next level by establishing a program that is devoted to educating students with disabilities about sexual health.

Jennifer’s internship here will help her establish professional networks we know will benefit her far into the future. Her work demonstrates to public and private employers that employees with disabilities are solid prospects as members of the workforce. Thank you, AAPD summer internship program, for matching us with Jennifer Lee.

 

Rockstar Campers

Avril visits Camp Oakes

Avril visits Easter Seals at Camp Oakes

I have an exciting announcement from The Avril Lavigne Foundation! Last summer, Avril paid a special visit to Easter Seals Camp Oakes in Southern California, meeting with the campers, the volunteer staff and learning about their camp experiences. Avril loved her time there so much that she’s created a way to give even more campers the chance to go to summer camp without worrying about the cost. Through her foundation, Avril created CAMP S.T.A.R.S., which stands for Summer Time Avril Rock Stars, and will help send 50 kids with disabilities to camp this summer who otherwise might not be able to afford it. CAMP S.T.A.R.S. will launch at 5 sites across the U.S. and Canada this summer, including Easter Seals Southern California, Easter Seals Washington, Easter Seals North Carolina & Virginia, Easter Seals Greater Houston, and Easter Seals Alberta, Canada.

CAMP S.T.A.R.S. is an expansion of the Avril Lavigne Foundation’s Rockstar Club at Easter Seals, and it’s designed to support recreational programming for kids and youth with disabilities to explore their talents, make friends, have fun and learn new skills. Avril Lavigne went to summer camps when she was a kid, so she knows how valuable a summer camp experience can be. Seeing the campers being able to participate in fun activities and make new friends was a great feeling that inspired her vision for The Avril Lavigne Foundation.

I love a quote I heard from camper Joy Durkee who has been attending Easter Seals Camp Oakes in Southern California for 20 years: “Camp helped me make friends, learn to take care of myself and become more independent,” she said. “It is truly the happiest place on earth!”

 

Disaster Preparedness when you have a disability

Communities across the United States face the threat of disasters almost every day, both large and small, and nearly 25 percent of the people in these communities are children. Some of these children have disabilities, and that’s why the Institute of Medicine of the National Academies recently invited Easter Seals to provide expertise for a workshop called Medical and Public Health Preparedness, Response and Recovery Considerations for Children.

Easter Seals also addressed the unique needs of children with disabilities on a panel called “Augmenting the Reach of Public Health Planning through Community Action,” and many disaster preparedness resources were highlighted at the meeting. Here are two resources that address specific needs of individuals with disabilities:

There is much to be learned and done to ensure ALL people are safe in an emergency, and I look forward to Easter Seals continuing to play an important role in making all communities safe for all members.

 

Reframing beauty

Grace, a smiling second grader

Picture of Grace by Rick Guidotti as featured in the NBC article

A coworker passed along an NBC article/photo spread the other day, and the vivid image of a girl named Grace drew me right in. I was hooked, and I hadn’t even read the article yet!

Once I got to reading, I learned that Grace is a social second grader who’s nicknamed “The Queen.” Grace has Down syndrome, but this image was not about Grace’s disability. It was about the beauty of her ear-to-ear grin. I scrolled down the page and was greeted by more powerful images of happy kids and teens in their element.

The photographer responsible for these beautiful photos is Rick Guidotti. Guidotti has spent the last 15 years of his career taking stunning pictures of people with disabilities. He was inspired to take these photographs after flipping through a medical journal about genetic disorders. Shocked at the lack of humanity the images displayed, he made it his mission to change the way society looks at people who may not fit the conventional beauty mold.

I watched the newscast that went with the article and was inspired by Guidotti’s passion for his work. His face lights up when he talks about how gorgeous and amazing the people he photographs are, and now he is persuading doctors to reevaluate the outdated images in their journals. “The idea is to put that humanity into medicine. To make sure we don’t see a diagnosis, but a human being,” Guidotti said. He wants people to see those with differences not as victims, but kids and people first and foremost.

The NBC piece was touching and left me yearning for more. During my lunch breaks I discovered more about this amazing photographer and his mission. I learned that Guidotti left behind his life in New York City and Paris (working for the likes of Elle and GQ) to start Positive Exposure, a non-profit organization that is described on its web site as “utilizing photography and video to transform public perceptions of people living with genetic, physical and behavioral differences – from albinism to autism.” I encourage everyone to look through Positive Exposure’s gallery of photos. Guidotti’s work is crucial in a society where photoshopped models dictate what “beauty” is. These images convey more beauty and power than any fashion magazine can.

 

This bike ride was absolutely precious

Earlier this week Chris Dillon, the Veteran Services and Community OneSource Manager here at Easter Seals, shared a wonderful story about a long bike ride he took to help people who have MS. I thought you blog readers would enjoy it as much as I did.

You’re not going to believe this

by Christopher Dillon

Just got in. Sitting is a little difficult, but it was definitely worth my little bit of discomfort. Here’s why.

At the rest stop on Mile 76 on Saturday, I met a woman who was a volunteer and was just thanking everyone for riding. I came up to get some Gatorade and a lens cleaner for my sunglasses, and she thanked me for riding. She kept saying that it was because of the riders that she was able to get the new medicine to keep her MS in remission for nearly 2 years.

We just started talking, and I found out that her husband was a Vietnam Veteran and he had called an organization called Easter Seals and spoke with a lady named Shannon Thompson. She said that Shannon was wonderful and gave her husband a list of organizations that could help him. “And they have!” she exclaimed.

She then asked me what I do. “You’re not going to believe this,” I told her. “But I am the Veteran Services and Community OneSource Manager for Easter Seals, and I work with Shannon.” She came around the table and gave me a hug and told me to give Shannon a hug for her and her husband. The expression on her face is something that I will never forget. Absolutely priceless.

At that moment it didn’t matter that I had 24 miles to go, 17 miles of it into a strong head wind, legs feeling like spaghetti and a big challenge to sit on a bike seat. It was definitely worth it! I already know I am going to sign up and do it again in 2014. And next year? I think maybe 175 miles…!

 

Telling their stories on Capitol Hill

The group in Washington, DCEaster Seals job training participants and program staff from across the country met recently with key Congressional offices to discuss Easter Seals’ Senior Community Service Employment Program (SCSEP). SCSEP is a U.S. Department of Labor program that provides low-income, unemployed individuals, age 55 and older, with temporary work experiences and job training to help them find permanent employment in their communities.

Easter Seals is a national SCSEP provider with programs in eight states:

  • Alabama
  • Connecticut
  • Illinois
  • New Jersey
  • New York
  • Ohio
  • Oregon
  • Utah

As part of the Easter Seals Participant Advisory Council national conference held in Washington, a dozen Easter Seals SCSEP participants and staff described the program and their training experiences at a series of educational meetings with congressional staff. Their stories let congressional staffs know the real impact of SCSEP, the only federal program dedicated to helping older workers find jobs.

The Senate is preparing to review and approve the President’s proposed 2014 budget, so this meeting was particularly timely. SCSEP participants were given a platform to share how the program has made a positive difference in their lives, and each speaker walked away empowered and knowing that their voice had been heard.