You’re not alone … when your sibling has autism or a disability
by Amanda
My brother was diagnosed with autism 12 or so years ago, but my parents were in denial. They were afraid of the word autism. So we told people that he had PDD (Pervasive Developmental Disorder).
I sure wish there had been a “Sibshop” around back then.
I did sign up for a “support group” at school for students with siblings with disabilities. When we went around the circle and I said that Brad has PDD the teacher thought I had made up a disability. I was sent back to class! Not only was I embarrassed, but I left feeling like nobody really understands what it is like to have a brother with autism.
Nowadays, Easter Seals Southeast Wisconsin provides Sibshops, a wonderful support network for siblings. Sibshops were developed by the Sibling Support Project in Seattle and are used throughout the country. The workshops recognize the many contributions made by brothers and sisters of kids with special needs. Kids can come together, play games, do crafts, and learn that they are not the only ones experiencing life with a brother or sister with a disability.
When I was growing up, it was hard to relate to other kids when it came to home life. I was embarrassed to have friends over because I didn’t know if my brother would have a melt down or walk around naked. It was hard to explain why there were always people around working with Brad. How I wish I’d had a support network, and friends who were experiencing similar circumstances!
If you have school-aged children who have a sibling with a disability, I would urge you to find your local Easter Seals or Sibshop support group. They may only meet once a month for a few hours, but I know firsthand that your child will leave with greater understanding and appreciation for their sibling and will find a safe place to share their hopes and fears for their sibling with Autism.