Using surveillance data to develop services and supports

One of the primary responsibilities of the National Center for Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention is the surveillance and the collection, analysis, interpretation and dissemination of health data. NCBDDD has been collecting data on autism for years, and with the prevalence of autism growing and changing, there is a growing need for services and support for individuals on the spectrum. Coleen A. Boyle, PhD, MSHyg, Director of the National Center on Birth Defects and Developmental Disabilities, does a great job explaining the surveillance data In this clip from CNN while also highlighting the importance of early intervention and the effects that early intervention has on long-term outcomes for autism and other developmental disabilities.

Surveillance IS important, no question. To make a real impact, however, the resulting data must be used to develop services and supports for individuals who are identified through the surveillance. Getting word out about the NCBDDD and all it does at the Centers for Disease Control and Prevention is no easy task. Dr. Boyle takes on this responsibility every day and does a tremendous job.


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  1. Patricia Wright Says:

    Mel – the limited resources available to familines is something Easter Seals hears about regularly. Three years is a long time to wait for support. In-Home services can also be a cost-savings as it decreases the need for VERY expensive residential supports in the long-run. Families and children with autism really do deserve to have the support they need to lead happy, productive lives.

  2. mel brown Says:

    since everyone is doing nothing but research are any results. Such as funding and in home services lasting more than one year. i have been trying to get help for my children for 3 years and I am now just receiving the “ok” to have in home assistance for the next year. But the funding came from a local source, nothing state related. Its a real shame that children with autism have to suffer longer because of resources and restrictions

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