Obama’s commitment to people with autism and other disabilities

Easter Seals congratulates President-elect Barack Obama on his election win. Easter Seals in Washington, D.C., and Illinois both have a strong working relationship with Barack Obama and commend his strong commitment to persons with disabilities.

The Obama-Biden team has specific policy positions on disability that are aligned with Easter Seals’ priorities. You can view their disability plan and their autism spectrum disorder Plan on the Obama-Biden Web site.

Easter Seals pledges to work with members of the incoming 111th Congress and the new administration on legislation benefiting people with disabilities and their families.

 

Comparing FDR and Obama

I’ve been very lucky to be involved in the disability rights movement for more than 20 years. I work in Washington, D.C., and when the Franklin Delano Roosevelt Memorial was completed here, I gained a better appreciation of that president’s legacy as a role model for people with disabilities. Literally hundreds of people with disabilities have told me that their parents said if FDR could be president, they could be, too. Today, millions of African American parents are having the same conversation with their kids.

I am especially optimistic about one aspect of the Obama presidency: education. President-elect Obama is the product of a caring family, the potential for learning, and opportunities to demonstrate his abilities. My hope is that his leadership will result in expanding similar opportunities for students with disabilities.

 

“Yes I Can!” — Obama victory inspires Maurice

It has taken a few days to gather my thoughts after the excitement of Tuesday. I wasn’t able to go to the Obama rally in grant Park, but I enjoyed every minute of it on television! Before the election I held a mock election at the Therapeutic School and Center for Autism Research to encourage all staff and students here to exercise their vote. I also passed the word to people via email, facebook and MySpace: Get Out and Vote!

As an individual living with autism, I feel people with disabilities deserve a second chance in life. Voting gives those of us with disabilities a second chance in life because we are the ones who can make it happen ourselves. If you don’t react to some of the problems, chances are you and the country will face more obstacles. That is what I’ve been used to during the 25 years of my life.

As far as voting in an election goes, I feel Americans with disabilities are equal to others because we all have one thing in common, which is saying what’s on our mind. And after Tuesday, the one thing I want to say is this: YES WE CAN!

 

20 million voters with disabilities expected to vote

I’m about to put Hanni’s harness on so she can lead me to my local polling place. Sounds like this year I won’t be alone.

The American Association of People with Disabilities (AAPD) reports that nearly 20 million people with disabilities are expected to vote in this election.

“A 20 million strong voting block can easily decide a presidential election, and in this great country, elected officials respond to those who vote,” Dickson {Jim Dickson, Vice President for Government Affairs at AAPD} said. “We look forward to working with the newly elected president, Congress and state and local officials to improve employment and living conditions for the nation’s largest minority.”

Dickson says the expected increase in numbers of voters with disabilities is due in part to the $850 million in federal funds allotted from Congress to improve voting accessibility.

I can’t wait to put those headphones on, crank up that talking voting machine and make my choice independently and privately — just like my fellow American citizens do.

 

A last-minute look at the candidates

Five days until the election. If you are still undecided, here are some links to information on each presidential candidate’s view on autism and other disability issues.

The Autism Society of America (ASA) website features a presidential election resources page with full statements by Republican Sen. John McCain and Democratic Sen. Barack Obama.

If you prefer going directly to each candidate for information, the McCain campaign’s website highlights his healthcare and education policies, plus a statement about autism. Obama’s homepage and his disabilities page give information about the candidate’s policy issues.

I’ll be voting on my own this year using a touch screen with audio output — the Help America Vote Act of 2002 requires “voting systems” to provide independent and private voting for all voters, including citizens who have disabilities. I toyed with voting early, but in the end decided to wait until election day. I’m actually looking forward to standing in line with my fellow Americans.

 

Scottie Gaither passes on the baton

The Gaither family

We returned on Sunday from an action packed five days in Orlando for the Easter Seals 2008 Convention. This trip was bittersweet for the Gaither family — it marked the time when Scottie passed the baton, so to speak, to the new child representative. Scottie and all of us have had such an amazing and exciting time this past year that it will be a little hard to give up. We have made the most precious friends and have had some truly wonderful experiences.

There are some very specific things I have learned this year as the mother of the Easter Seals 2008 National Child Representative:

  • Scottie does not like to wear long sleeves or dress fancy (as he would say).
  • He has become a very adept traveler and knows exactly what to expect at the security gate in airports.
  • He is a very bright and funny young man that can rise to almost any occasion and never ceases to amaze me or his audience.
  • He is autistic. In case I ever begin to forget, he finds gentle ways to remind me.
  • He has been treated like a celebrity and in his mind has become one as well.
  • He can go most anywhere and sit through most anything if he has his Nintendo DS or his PSP and a good video game.

The people at Easter Seals all over this country and beyond are the most amazing people I have had the honor to know. We have only scratched the surface of our mission as a family: to give back to Easter Seals, as they have given us so much. Easter Seals is changing lives on a daily basis for children like my precious son Scottie. Easter Seals truly does provide HELP, HOPE and ANSWERS!

We would like to thank everyone who is involved with — and who contributes to — Easter Seals for all the love, kindness and support you have shown us this year. As I said at the convention, our official time might be over, but we plan to remain friends of Easter Seals for many, many years to come. Blessings to you all.

Watch a video about Scottie and the Gaither family and see how you can give help and hope to children like him.

 

Courting the “special needs vote”

Our son turned 2 right before the 1988 presidential election. Gus was enrolled in our local Birth to Three Early Intervention Program then, and would be entering the world of special education at our local public school the next year. If Michael Dukakis or George H.W. Bush had mentioned “special needs” in a speech or debate in 1988, I would have taken note. But trust me, I didn’t hear a word.

Fast forward 20 years. Last Friday, Republican vice presidential candidate Gov. Sarah Palin delivered a speech outlining policy goals for special education and disability and advocacy. You read that right. A major policy address. On special education and disabilities.

Here’s an understatement for you: this is an amazing election year. I already posted a blog about the final presidential debate, where both candidates mentioned autism and other disabilities. A post on the Left Brain/Right Brain – Autism News and Opinion blog asks whether McCain is “courting the autism vote.” A story in the American Chronicle this week mentions “the special needs and autism vote.”

But wait, there’s more! Last Tuesday, I got a call from an ABC 7 reporter here in Chicago. She interviewed me for a Sunday morning piece about McCain and Obama’s policies when it comes to disability issues. ABC 7 wanted to know who I thought might get … you guessed it, the “special needs vote.” If you missed my 8 seconds of fame on the Sunday morning ABC Chicago news, never fear! The story is available online.

Special needs vote. Twenty years ago, I would have never thought of stringing those three words together. But hey, nine million American children under age 18 have a special health care need, 54 million (1 in 5) have a disability, and an additional 54 million individuals are caregivers of people with disabilities.

Gee, I guess it’s about time the candidates started courting our vote!

 

Autismvox in Newsweek

When you get a chance, check out this article in Newsweek about Kristina Chew’s reaction to Sen. John McCain’s mention of autism in last week’s debate. You might recognize Kristina Chew’s name — she writes the Autismvox blog. I read that blog almost every day and have referred to it many times in my posts here.

Kristina Chew is an assistant professor of classics at Saint Peter’s College in Jersey City, N.J., and her son, Charlie, 11, has autism. Newsweek went to her to get “a mother’s reaction.”

What did you think of Senator McCain’s debate comments?

Kristina Chew: Very puzzling. It seemed that he was conflating autism and Down syndrome. Certainly, parents of kids with autism and Down syndrome have tons of overlap in our concerns, but they’re very different conditions. I found that troubling. And the comments he made about autism, they seem to betray a lack of knowledge or understanding about the kinds of things that autistic children need. It almost seemed to be a rhetorical statement. To be really cynical, it’s as if he’s playing a sympathy card. He’s sentimentalizing the children, but not looking at how we can help them, how we can teach them, how we can make things better.

But Palin does have a special-needs child.

His statement that Sarah Palin understands the challenges better than anyone else, I thought that was very unfortunate for him to say. It’s just incredibly presumptive. I don’t think we really have a sense yet of how Palin understands special-needs children.

Why not?

I think every parent of a special-needs child, we all want to feel that we’re experts, that we all do know better about our child. But I think in reality often we don’t. What I knew about autism when Charlie was an infant, a toddler, is nothing like what I know about it now. We’re all looking for answers,
for solutions, for better therapies and schools for our children.

There’s a lot more in the article, and its well worth reading. What was most interesting to me, though, is that Newsweek went to a blogger as an expert.

We’ve come a long way, baby!

 

It’s never too late: teenagers with autism

“Early intervention is optimal, but it’s never too late.”

That was my favorite line from the Reaching an Autistic Teen story in Sunday’s New York Times Magazine. The piece was about the progress teens with autism can make with effective intervention.

Early intervention is important, but really, aren’t we all life-long learners? Teens with and without autism are capable of learning, developing new repertoires and increasing their quality of life. Parents and professionals often talk about the “window of opportunity” present in very young learners. Certainly young children with autism can make remarkable gains with effective intervention, but teens and adults with autism can also learn.

Easter Seals provides services and supports to individuals with autism throughout the lifespan. We believe learning is possible — at any age.

 

You’re not alone … when your sibling has autism or a disability

My brother was diagnosed with autism 12 or so years ago, but my parents were in denial. They were afraid of the word autism. So we told people that he had PDD (Pervasive Developmental Disorder).

I sure wish there had been a “Sibshop” around back then.

I did sign up for a “support group” at school for students with siblings with disabilities. When we went around the circle and I said that Brad has PDD the teacher thought I had made up a disability. I was sent back to class! Not only was I embarrassed, but I left feeling like nobody really understands what it is like to have a brother with autism.

Nowadays, Easter Seals Southeast Wisconsin provides Sibshops, a wonderful support network for siblings. Sibshops were developed by the Sibling Support Project in Seattle and are used throughout the country. The workshops recognize the many contributions made by brothers and sisters of kids with special needs. Kids can come together, play games, do crafts, and learn that they are not the only ones experiencing life with a brother or sister with a disability.

When I was growing up, it was hard to relate to other kids when it came to home life. I was embarrassed to have friends over because I didn’t know if my brother would have a melt down or walk around naked. It was hard to explain why there were always people around working with Brad. How I wish I’d had a support network, and friends who were experiencing similar circumstances!

If you have school-aged children who have a sibling with a disability, I would urge you to find your local Easter Seals or Sibshop support group. They may only meet once a month for a few hours, but I know firsthand that your child will leave with greater understanding and appreciation for their sibling and will find a safe place to share their hopes and fears for their sibling with Autism.

Read Amanda Dodds’ biography.