Creative ways to learn about autism at A.C. Moore

A.C. Moore Act for Autism puzzleI am pleased to introduce Rachel Talen as a guest blogger. Easter Seals is so fortunate to have Rachel as an intern. Rachel is a student at Calvin College and began interning at Easter Seals last fall.

A creative way to support families living with autism

by Rachel Talen

With April being Autism Awareness Month, A.C. Moore Arts & Crafts stores are providing a fun and creative forum to increase autism awareness. This Saturday, April 17, 2010, from 1:00 p.m. to 3:00 p.m., Eastern Time, A.C. Moore will throw a free in-store Make and Take craft event at all of its 135 locations.

Make an outing of it! Your family can come into the store to decorate an Act for Autism jigsaw puzzle together. Completing a project together can be a great opportunity to spend time with your family and to talk about autism.

Can’t make it out to one of the A.C. Moore locations? You can also go online for instructions to create a puzzle at home (PDF). It’s a way for you to play with your kids, decorate a jigsaw puzzle, and to learn about autism all at the same time.

A.C. Moore Arts & Crafts store is also helping out Easter Seals from March 1 through April 17 — shop now and you’ll be able to donate $1 to Easter Seals’ Act for Autism campaign at checkout. The money raised will support Easter Seals autism services in local communities.

 

Different, But Not Less: Temple Grandin

Temple GrandinThis past Tuesday was Temple Grandin Day in Fort Collins, Colorado. The mayor of Fort Collins proclaimed April 6th “Temple Grandin Day” to recognize the Colorado State University professor’s contributions to the understanding and treatment of autism — and to improving conditions at large livestock processing plants.

Dr. Grandin truly is a remarkable woman, teacher, author, advocate and a revered person in the autism community. She has inspired individuals with autism, their families and countless professionals through sharing her success story.

That’s why Easter Seals is pleased to be able to welcome Dr. Grandin to our symposium in Fresno California this Sunday, April 11th. The symposium, Different, But Not Less: Strength-based Strategies Toward an Independent Life, will provide a forum for Dr. Grandin to share her strengths-based approach to life and how this approach has led to independence.

For those of us fortunate to be in the audience I’m sure the content will be riveting. Dr. Grandin has agreed to answer a few questions posed by those who may not be able to attend. If your question is selected, Dr. Grandin’s answer will be captured on video and posted on YouTube. Stay tuned to this blog to find out where the answers will be posted. Don’t miss this opportunity to submit your question!

 

Spreading hope and action with Parents Magazine

Donate $20 and get a complimentary subscription to Family Circle MagazineEaster Seals is part of some great efforts surrounding autism this spring. We’re particularly excited about working with Parents Magazine to spread the word about the importance of autism services — and give families a way to help during Autism Awareness Month!

Be sure to check out the April issue of Parents Magazine — this month’s four-page spread highlights Easter Seals’ Act for Autism® campaign, providing information on early intervention, ways others can spread hope for families living with autism and why supporting early intervention services for young children is so important.

Parents Magazine has also offered Easter Seals another opportunity to spread hope and action for autism: the Parents Online Community. My Act for Autism group blog addresses autism topics and questions and comments regarding individuals with autism. I plan to spread the message that every child with autism (and their parents!) should have access to autism resources and care, necessary services, support and guidance at every life stage.

Parents Magazine is also supporting Easter Seals with the opportunity to receive a one-year subscription to its sister publication, Family Circle, with a $20 or more donation to Easter Seals. Just fill out the online donation form for a great way to support families living with autism during Autism Awareness Month.

 

Have a question for Temple Grandin? Ask her here!

Temple Grandin is such an inspiration for so many individuals and families with autism. Her willingness to share her story with the public has given a vision of what is possible.

I still remember when I first read Emergence: Labeled Autistic in the 80s. Yep, over 20 years ago! Reading this book gave me hope that the children with autism in my classroom would grow up, lead meaningful lives, contribute to their communities — be successful!

Dr. Grandin has published additional books and given numerous lectures on the topic of autism. Most recently her biography was an HBO movie starring Claire Danes.

We at Easter Seals feel so fortunate that Dr. Grandin has agreed to join us at an event in Fresno, California this Sunday, April 11: Different, But Not Less: Strength-based Strategies Toward an Independent Life is an event that will focus on the strengths of Dr. Grandin and those with autism; strengths that can contribute to an independent life. Who better to tell this story than Dr. Grandin? This remarkable woman championed her strengths into an esteemed career in animal science.

Dr. Grandin has also graciously agreed to address questions at this event. If you would like to pose a question that focuses on strengths or independent life please post your question in the comment section below. The presentation and question-and-answer session will be videotaped. If your question is selected, Dr. Grandin’s answer will be captured on video and posted on YouTube. Stay tuned to this blog to find out where the answers will be posted. Don’t miss this opportunity to ask your question to Dr. Grandin!

 

People with disabilities: underutilized resources

Laree RendaEditor’s note: Laree Renda is Executive Vice President, Chief Strategist and Administrative Officer for Safeway Inc. Every year, Safeway devotes the month of April to raising money for Easter Seals in a coordinated company-wide fund raising drive. Laree’s blog post originally ran in The Contra Costa Times, a newspaper in the San Francisco Bay Area.

Read Laree Renda’s biography.

This year marks the 20th anniversary of the landmark Americans with Disabilities Act (ADA) that gave millions of previously forgotten citizens the legal right to more fully participate in American life — including employment.

For decades, people with disabilities were commonly institutionalized or “warehoused.” A small minority were afforded limited opportunity for employment in sheltered or isolated workplaces doing menial tasks often for less than the minimum wage.

Like the civil rights legislation in the 1960s that served as its foundation, ADA created some immediate and important change. The act literally reconfigured public space and redefined accessibility by breaking down physical and institutional barriers. The new law afforded this same demographic a broader range of opportunities to more fully exercise their constitutional rights. More specifically, ADA prompted employers to reconsider their definition of disability and proactively seek employment opportunities for this part of the population.

During the month of April, Safeway will conduct its annual disabilities fundraising campaign benefiting Easter Seals, Special Olympics and a range of other smaller organizations dedicated to assisting people with disabilities.

Quote from Safeway's Laree Renda: 'We employ nearly 10,000 people with disabilities'Safeway is committed to raising awareness and encouraging other employers to tap this vast talent pool all too commonly known as the “disabled.” As our nation regains its economic footing and we celebrate the anniversary of ADA, it is worth remembering that economic recovery should, at its core, include all segments of the population — that along with a paycheck, gainful employment affords a priceless measure of self worth.

While our nation has made progress, data on employment tells us that our nation is falling short of the spirit and intent of the ADA. In fact, people with disabilities remain on the outskirts of the workplace. According to the U.S. Department of Labor, of the some 27 million civilian, non-institutionalized Americans 16 years or older with a disability, approximately 80 percent are not even present in the workforce.

According to Richard Horne, director of Policy Planning and Research at the U.S. Department of Labor’s Office of Disability Employment, the percentage of people with a disability who are unemployed today has not significantly improved in the past two decades.

He says that while we are “eons beyond where we were in the 1970s and 1980s and opportunities are more plentiful, there’s still a long way to go.” Horne sees greater willingness among employers to hire people with disabilities; however, the vast job gap remains a barrier to any measure of success to the jobs provision of ADA.

In our view the key is two fold: first, employers must understand that physical or intellectual disability does not predict poor employability or productivity.

In fact, our experience proves the opposite. We employ nearly 10,000 people with disabilities, and they are among our most loyal and productive employees, covering a broad range of jobs both in our retail and support operations.

For instance, we have developed creative workplace solutions for visual and hearing-impaired clerks working in our retail stores.

Next, employers should understand they are not required to fly solo when employing people with disabilities. There are a host of national and regional organizations focused on training and placing people with disabilities in the workplace.

Easter Seals, The ARC, Stepping Stones, Clausen House, Jewish Vocational Services and other like-minded organizations are actively working to ensure that employers have resources to ensure employees with disabilities are successful creating a true win-win situation.

Many of these organizations provide on-site staffing to coach both the employee and employer on how to acclimate and accommodate people with disabilities.

Employers can utilize third-party coaches who shadow employees during their early days on the job. The process has created benefits well beyond providing a job. Through our experience we have gained unique and unexpected insights into the real value of mentoring and training.

As many American’s suffer through the most profound and sustained economic downturn of a generation, we would simply ask readers to consider this — the financial uncertainty and anxiety that many among us are experiencing for the first time remains a chronic and frustrating state of being for millions of people with disabilities seeking employment.

Easter Seals CEO James E. Williams Jr. recently expressed a profound sentiment that echoes our experience and that of other American companies that have chosen to hire and develop people with disabilities. He said that “people with disabilities make an enormous contribution to America on so many levels. Meaningful employment remains the best way for people with disabilities to be free from the centuries-old cycle of poverty, social isolation and marginalization.”

 

Easter Seals Crossroads delivers important autism resource to pediatricians

The Easter Seals Crossroads team.

The Easter Seals Crossroads team.

At this very moment Easter Seals Crossroads has six teams of professionals canvassing the Indianapolis area distributing Autism Resource Toolkits to over 150 pediatricians in recognition of Autism Awareness Month.

Cover shot of the Resource Toolkit for CliniciansThe toolkit is a product of the American Academy of Pediatrics and is an awesome resource for any doctor providing primary care. It includes information on everything from screening and diagnosis to handouts that doctors may give to their families. It even includes sample referral forms and letters that doctors can use to gain access to insurance payment for early intervention, educational, and therapeutic services for people with autism!

Through a grant from the Lilly Endowment we are able to distribute the Toolkits in an effort to support doctors in their care of families affected by autism. We want doctors to know that Easter Seals is ready to partner with them and the families they serve.

 

Autism voice on the National Council on Disability … maybe

The National Council on Disability (NCD) may have an individual with autism in the mix soon. The NCD is an independent federal agency, composed of 15 members appointed by the president … and there’s the potential that one of these 15 will be Ari Ne’eman. Mr. Ne’eman is the founding president of the Autistic Self Advocacy Network (ASAN). Apparently, his appointment is provoking a bit of controversy.

The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement in the world of autism. If you read the statement on the National Council on Disability Web site’s home page, it seems like Ne’eman is a good fit for the council:

The purpose of NCD is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, and that empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.

However, a story in the New York Times reports that this nomination is controversial.

Mr. Ne’eman declined to be interviewed, citing the pending action on his nomination. But in previous interviews with The New York Times and other publications, he has argued that those most severely affected by autism are the ones who benefit least from the pursuit of a cure, which he suggests is unattainable anytime soon. Instead, he says, resources should be devoted to accommodations and services that could improve their quality of life.

Easter Seals is also dedicated to having research and service dollars used to ensuring those living with autism today have access to a high quality life. Unfortunately, there are limited financial resources.

It is unfortunate that those living with autism must compete for dollars with the genetic researchers. The growing prevalence of autism indicates that there is significant need for support.

Should Mr. Ne’eman gain the appointment, he is going to have to represent people with autism. He will need to be aware and prepared to speak to the broad set of issues on the whole spectrum of people who live with autism — not just his experience.

Having an autism voice on the National Council on Disability is a positive step. Ideally, Mr. Ne’eman will be able to advocate for additional resources to help address the incredible unmet needs of those living with autism today.

 

Maurice drops the puck!

March 10, 2010 was a historic day for the Easter Seals Therapeutic School and Center for Autism Research.

Staff, students and patrons were on hand for the official grand opening of the Chicago Wolves School Library. From the Chicago Wolves web site:

The library, located at Easter Seals Therapeutic School and Center for Autism Research, was made possible by funds raised through the Wolves’ annual St. Patrick’s Day jersey auction and raffle. The Chicago Wolves Library is part of the country’s first-ever, state-of-the-art, Therapeutic School and Center for Autism Research.

Maurice drops the puck at a Chicago Wolves hockey gameThe festivities featured many personalities from the Wolves, former players Bob Nardella, Steve Martins and Skates, the team mascot. Students assisted the players on cutting the ribbon to officially open the library. Then they were entertained with the players reading wonderful stories of books from the library. The Chicago Wolves School Library is a huge success and will be an essential learning tool for the students at the Therapeutic School.

Two days after the library grand opening I had the opportunity to attend a Chicago Wolves game with some of my other co-workers at the Therapeutic School. What was the most special about the evening was that I had the opportunity to drop the ceremonial puck in front of thousands of spectators. I have to admit that it gave me goose bumps at first because I never had the opportunity of playing an important role in the game of hockey or any other major sporting event.

Here’s what happened: the public address announcer announced my name. I slowly walked on the red carpet. I could have heard a pin drop. A few seconds later, I successfully dropped the puck firmly onto the ice. The crowd gave me a standing ovation! I received applause from the crowd and the players, which was absolutely the best feeling in the world.

Unfortunately for the Wolves, they lost the game 3 to 0, but it was a good game until the very end. After the game, I had the opportunity to wait outside the locker room and meet the players and get some of their autographs. In the end, I received a cool gift, which is the actual hockey stick Noah Welch uses in his games. That was the most surreal moment in my life indeed!

I have to admit it was the first hockey game I experienced in person, and I had a great time dropping the puck in front of thousands of people. I would like to thank the Chicago Wolves for their continual support to Easter Seals Metropolitan Chicago. I hope they will continue to be involved in Easter Seals services for many years to come!

 

Health care reform meets our principles

Easter Seals has supported a series of health care reform principles related to legislation that proposes changes to the health care insurance and delivery system in the United States.

I am pleased to report that the majority of our principles were incorporated into the final language of the Patient Protection and Affordable Care Act approved by Congress and signed by President Obama on Tuesday.

Of particular note for people with autism is our principle regarding non-discrimination.

  • Principle: That all individuals be assured participation in the nation’s health care system without discrimination on any basis, including disability or other special need, illness, condition, genetics, age, gender, ethnicity, financial resources and employment status.
  • Principle Met: The legislation prohibits health plans from denying coverage to children with pre-existing conditions effective 6 months after enactment and, beginning in 2014, this applies to all persons.

I thank Easter Seals staff and our supporters for ensuring that people with disabilities and their families were not forgotten in health care reform.

 

Teen with autism has perfect March Madness picks

I decided to take part in the NCAA Men’s Basketball Tournament pool here at Easter Seals Headquarters this year. There was no money involved, thank goodness — both of my final teams were out by the second round!

If only I’d consulted Alex Hermann before making my picks. Alex has autism, he is 17 years old and lives in a nearby suburb of Chicago. We’re into the “Sweet Sixteen” round of this year’s upset-filled March Madness, and so far Alex has chosen every single winning team correctly. From an NBC story:

The odds of anybody doing that? One in 13,460,000, according to BookofOdds.com. It’s easier to win the lottery. Twice.

“I’m good at math,” Alex, a Glenbrook South High School student, said. “I’m kind of good at math and at stats I see on TV during the game.”

Alex’s 24-year-old brother Andrew helped his little brother enter the picks on CBSsports.com’s bracket challenge. They entered one of three bracket games offered by CBS. Unfortunately for Alex, it was the only one without a prize attached — one of the other CBS games gives $5,000 per winning round. Sounds like his mom is taking it all in stride.

“If he would have won any money he would have just saved it,” his mother Diane said. “He’s a big saver.”

For those of you who get an opportunity to pick again when it comes down to the Final Four, here’s a hint: Alex picked Purdue.