Looking at life from the Outside-In

Students in Nairobi, Kenya

Students in Nairobi, Kenya

A blog post Patricia Wright wrote described a trip she took to China to volunteer for The Five Project. Her volunteer work was part of Outside-In, where Easter Seals headquarters offers its employees paid time off to volunteer. This year, I used my Outside-In time to volunteer in Nairobi, Kenya, with a group from Willow Creek Community Church. There, we visited several schools and a community center and met so many leaders who are working to better their communities. I was able to be immersed in the culture and was challenged to try to look at life through the eyes of others half a world away.

The cultural differences took some getting used to. The food, the language, and even the way you navigate the terrain were all new to me. I didn’t meet a single person with a visible disability. Later, I realized it’s because people with disabilities are often unable to participate in social situations there. The roads were unreliable, shops and restaurants were inaccessible and there were no elevators or accommodations for people with disabilities in sight.

My group joked we were operating in African time. We found ourselves waiting longer for things, and it’s common to be late for a meeting. In Kenya, they base time by event, not the actual time. I liked this: it allowed us to appreciate our time with other people more and focus less on our schedules and personal agendas.

Kenyans value sharing and community is the complete opposite of America’s individualism. People who have a little extra give to those who are struggling. You have to be careful who you call your friend because it’s a high honor. There, “friend” means, “I share your burden,” so if I were to call one of the students I met a “new friend,” he might expect me to pay his school fees!

It was so meaningful to see life in a new way. While helping with ESL (English as a Second Language) classes, I met Igra, a Somalian refugee. Igra is learning English for the first time. I thought about how she must feel, displaced from her country, not able to return, but not quite welcome in Kenya. I tried to learn basic phrases in Swahili and I can’t imagine trying to learn English — that seems so much harder.

I tried looking at life through Faith’s eyes. She’s a high school girl living in crowded dorms in the Gurec community in Nairobi. She and her friends have the same dreams and aspirations as American girls (travel, maybe get a scholarship, find work) but fewer opportunities and resources to make them happen.

I saw the eagerness to learn to read and write in kindergarten and first grade students at Eastleigh Community Center. Unfortunately, they live in an environment where pencils, paper, and textbooks are scarce.

We met with a group of homeless teens who grew up as orphans, living on the street. One boy, Stephen, said life is difficult because he doesn’t know where his next temporary job or meal is coming from. We did our best to dive into the culture with the teens by sharing a meal of authentic Kenyan food: ugali (grits), chapati (pancake-like fry bread) and beef—the way they eat it (sans silverware!).

Talking with a coworker when I returned brought the experience full circle for me. We agreed Easter Seals is special because of the people behind the brand: our clients, their families and stories are the core of what Easter Seals is. People are what matter most in life.

When trips like these are over, the locals might not remember what you built, painted or planted, but they’ll remember your name, face and something about you. Across the world, we’re all people who are just trying to do the best we can.

 

Adults with ASD — Your opinion is important!

Where to live can be a huge life choice for many of us. I have lived in eight different states as an adult, and I can assure you that I preferred some locations over others. I have a strong preference for living in urban walkable environments so I don’t have to rely on a car, and I have many other preferences, too. I feel fortunate that I am able to choose my home and neighborhood to suit my lifestyle, and it goes without saying that I think adults with autism spectrum disorder (ASD) need to be able to make these same life choices as well.

The need for residential supports for adults with ASD has been gaining traction in the media. A story on Fox News highlighted the need for “residential supports” rather than mere “housing.” Residential supports include staff, which is sometimes needed to give people with ASD a higher quality of life by developing independent living skills. An NBC piece reported a shortage of housing for adults with autism.

The National Housing and Residential Supports Survey was recently launched by Autism Speaks to increase the support of both the public and private sectors to expand housing and residential supports opportunities for individuals with ASD. The survey needs to be completed by Friday, August 9 so that Autism Speaks can gather hard data about these needs and leverage that information into advocacy and awareness. The results from this survey will be used to support recommendations on a national strategic plan for housing policy and development.

If you are age 14 or older with ASD, or if you are a caregiver for an adult with ASD, please take 15 minutes to complete the survey before August 9th. Your opinion is important!

 

Connecting the dots: Reintegrating veterans into civilian life

Many soldiers return home with physical and psychological wounds. They face unemployment, families that are not always intact and communities that are unable to meet their immediate and long-term needs.

At Easter Seals Crossroads we recognize the urgent needs facing military families and veterans reintegrating into their communities after serving our country. In January 2013, we launched a Military and Veterans Initiative in which we facilitated a means for area organizations to discuss how, together, we can fill the gaps and reach out to those veterans who need our services.

Colonel David SutherlandColonel David Sutherland, Executive Director of The Dixon Center, began the Initiative with his keynote address to over 400 community leaders, speaking about the crucial needs that veterans who are reintegrating into the public sector rely on but may have difficulty finding. Out of this initial presentation, more than 50 key community stakeholders have continued to meet to develop a community action plan that addresses the critical reintegration areas of housing, employment and training, family support and health.

This July we were awarded a $267,580 grant from the U.S. Department of Labor to provide homeless veterans with job training aimed at helping them succeed in civilian careers. The goal of the program is to help homeless veterans in the Indianapolis metro area achieve economic self-sufficiency and stability through long-term employment.

Building on Easter Seals Crossroads’ extensive employment service experience and the Community Action Planning coalition, the Homeless Veterans’ Reintegration grant is aimed at addressing the complex challenges that homeless veterans confront. Working in partnership with a multitude of community organizations allows us to extend our services to offer veterans job search and placement assistance, on-the-job training, career counseling, life skills, mentoring, as well as help in finding housing.

Due to the nature of the grant, we are in the process of hiring qualified coordinators and recruiting volunteers with a service background. Coincidentally, a gentleman who volunteered in our Adult Day Center asked us if he could get involved with us in other ways. His background in human resources, experience working with people with disabilities and his status as a veteran made him a perfect fit to work with this new program.

A veteran in uniform at an Easter Seals Crossroads facility

“We know that understanding the culture of veterans is just as important as providing the services,” Marjorie Mansfield, Manager of Employment Services at Easter Seals Crossroads, said about this volunteer. “Besides being a subject matter expert in human resources, he has the understanding of the culture of being a veteran himself,”

Receiving this grant means that we can continue to improve the lives of individuals in our community who need vital employment and rehabilitative services.

I look forward to writing another blog as we start working with veterans so that we can share the good news of how this grant is affecting our community.

 

Run. Drive. Repeat.

Amy RichmondI am so pleased to introduce Amy Richmond as a guest blogger today. Amy is a member of the Easter Seals National Associate Board (NAB). She and other NAB members recently ran in the Ragnar Relay and raised $3,000 for Easter Seals.

Jumpstarting my Easter Seals fundraising efforts

by Amy Richmond

I’ve always enjoyed volunteering. It keeps me grounded, and helps me separate the important things in life from the trivial. I love being able to redeem a stressful, corporate day by doing something that makes a positive difference (wine also helps, but the benefits of volunteering endure much longer).

Until this year, my volunteer roles had primarily been in direct service. But I reached a place in my life where I felt I could also contribute in an organizational leadership capacity. When my friend Mike Sandy told me about the opportunities on the Easter Seals National Associate Board, I jumped at the chance to be part of the group.

Easter Seals is a world-class organization that helps people from all walks of life through a broad spectrum of services. I’ve found that the majority of people in my social sphere are aware of Easter Seals, but are surprised when I tell them about all of the great work the organization does for children and adults with disabilities, people with autism, veterans and seniors.

It’s easy to support an organization that supports so many people in so many important ways. And I’ve found that others are happy to join the cause once they become aware of all that Easter Seals provides for our community.

My friend Mike Sandy serves as the NAB president, and he suggested I jumpstart my Easter Seals fundraising efforts by running the Ragnar Relay (a 195-mile relay race from Madison, Wisconsin to Chicago). My first response was, “uh, no.” I’m not a runner. I’m more like a jogger. I will participate in the occasional 5k fun run if the weather is nice and there’s beer at the finish line, but being part of an intense, long-distance race with a team counting on me to perform seemed out of my league.

Mike assured me that it wouldn’t be competitive, that the race would include runners at all levels, and we could create a lot of buzz about the Easter Seals mission. So I said I’d do it. And as I was explaining the race to my husband, who I was sure would tell me I was crazy for agreeing to this, he said he’d run it too!

The Ragnar Relay is a race comprised of teams of 12 runners who travel in two vans, running day and night until they reach the finish. One of the 12 is always running. The remaining 11 are traveling in the van to deliver the next runner to the hand-off point and pick up the one who just finished. It’s basically: run, drive, repeat. You may have noticed that “shower” and “sleep” were not listed in the steps. I had some serious concerns about those omissions, but I stuck with it.

Way to go, Amy! She sure enjoyed her experience in the Ragnar Relay, and here’s some good news for people like me, who are a little less energetic than Amy: you don’t have to be a runner or a jogger to participate in the Chicago Walk With Me event in October. People of all abilities can support Easter Seals at Walk With Me, and anyone interested can join us for a kickoff breakfast on August 14, too — meet you there!

 

Helping low-income veteran families transition to permanent housing

I am pleased to introduce Catherine Todd from Easter Seals Oregon as our guest blogger today

Supportive Services for Veteran Families program

by Catherine Todd, Director, SCSEP and HVRP

I have exciting news to share from Easter Seals Oregon: we’ve been awarded a grant from the Supportive Services for Veteran Families (SSVF) program. Over the course of one year, Easter Seals Oregon and our partner, Mid-Willamette Valley Community Action Agency will serve 75 veteran families. Our goal is to stabilize 80% of homeless participants in permanent housing and maintain housing for 90% of at-risk participants.

The SSVF program is designed to improve housing stability for very low-income veteran households. The program will provide eligible veteran households with outreach, case management and assistance in obtaining Department of Veterans Affairs (VA) and other benefits, including housing counseling services. Easter Seals Oregon will provide the employment readiness training, job development and employment retention services to the Supportive Services for Veteran Families program, and program staff will provide the following to eligible families:

  • Assessment of household needs
  • Housing placement assistance
  • Financial assistance for rent, utilities, rent/utility deposits, security deposits and application fees to support housing stability
  • Home visits and housing counseling services
  • Coordination with other community resources and support providers to meet household needs, including health care, daily living, transportation, child care, legal, personal financial planning, fiduciary and payee services
  • Case management to support adults to attain goals which contribute to the self-sufficiency of the household

Thanks to this SSVF grant, Easter Seals Oregon and Mid-Willamette Valley Community Action Agency will be able to provide a range of services that promote housing stability and play a key role in connecting veterans and their family members to VA services such as mental health care and other benefits. Visit the Department of Veterans Affairs Web site to find out about other services for homeless veteran families across the country.

 

Caroline’s Cart: rolling out to a grocery store near you

Caroline and her mom at the storeGrocery shopping with kids can be a daunting task. I certainly don’t envy the super-moms who chase their hyper toddlers down the frozen treat aisle with a cereal box in one hand and an infant in the other. As a youngster, my wide eyes would fixate on mac-and-cheese and Skittles. My poor mom had to put up with my weekly waterworks and quivering lip begging routine.

For one out of every five American families, grocery store tribulations go beyond controlling a child’s wandering eye. As children with special needs outgrow the traditional built-in shopping cart seats, parents are left with no option but to maneuver around with a shopping cart in one arm and a wheelchair in the other.

Back in January, blog moderator Beth Finke introduced us to Drew Ann Long’s creation, Caroline’s Cart. The cart, named in honor of her daughter Caroline who has Rett’s Syndrome, was designed to accommodate people with a variety of levels and types of disabilities. Drew Ann’s goal was for families of special needs children to have an equal shopping experience. After five years, Drew Ann’s vision is becoming a reality.

Technibilt, a member of the world’s largest producer of shopping carts, has joined the cause to help this underserved market. The official product launch was July 18th. Technibilt will begin manufacturing Caroline’s Cart this August. Through this partnership, Caroline’s Cart will begin popping up at grocery stores across the nation!

It’s amazing to see a company like Technibilt address the needs of an often ignored population. Many may not realize how great the need for this kind of innovation is since they see few families at stores needing such a thing. The truth is this lack of visibility shows just how crucial this kind of innovation is! Moms are forced to hire sitters just so they can make a simple trip to the neighborhood grocery store.

The Long family has already won me over. Caroline Long, the 2012 National Youth Ambassador for Easter Seals, may not be able to speak, but her beaming smile says it all. Drew Ann’s dedication has shifted her grassroots effort into a mainstream reality. And she doesn’t plan on stopping! Drew Ann’s next mission is to create a foundation that will put Caroline’s Cart into stores in rural towns that would not be able to afford them. Many news articles label Drew Ann as a “stay at home mom.” Truth is, Drew Ann is far from that simple title, she is a disability advocate who will revolutionize every-day life for families of children with special needs.

For more information on Caroline’s Cart visit www.carolinescart.com . If you want to see some fun pictures of families enjoying the cart, be sure to check out the Caroline’s Cart Facebook page. I’m anxiously awaiting the cart’s arrival at my local grocery stores!

 

Where can vets who survive the war go to survive the peace?

On June 24th Easter Seals and Dryhootch opened the doors to a new 'Forward Operating Base' that will serve veterans with peer mentoring, supports and resources

A news story on Fox 6 Now highlights our new partnership with a program called Dryhootch. Dryhootch is an organization committed to helping veterans of all wars and has a special focus on our returning military members and their families.

“Hootch” was a term commonly used in the Vietnam combat theater for a hut or other safe place to sleep. Adding the word “dry” to the name Dryhootch is a play on the word’s association with alcohol. Alcoholism has been a major problem for veterans of all eras, and the term “dry” denotes the organization’s mission to provide a social gathering place for veterans that is safe, comfortable, drug and alcohol free.

Dryhootch provides a coffee house or café like environment that is dedicated to “helping Veterans who survived the war, survive the peace.” Milwaukee already has a Dryhootch site, and this month our Workforce training Center here at Easter Seals Southeast Wisconsin started hosting a new one in Waukesha called the “Forward Operating Base.” It’s a drop-in center for people to stop in, whether they have needs or just want to talk with other vets who know where they’re coming from. From the Fox6 Now story:

Inside Easter Seals’ Workforce Training Center, you’ll find an office acting much like a coffee-shop, with couches and tables, where vets can connect with others on issues like PTSD. They can get employment and educational services, and families can get support too.

Milwaukee and Waukesha are the two Wisconsin counties with the highest number of veterans in their communities: over 30,000 veterans call Waukesha County their home. Dryhootch knows Easter Seals is an established organization with deep roots and a history of service to families. The peer mentors of Dryhootch have lived the military life. At Easter Seals Southeast Wisconsin, we have lived to help children, families and individuals live more independent lives for nearly 80 years. Our partnership with Dryhootch is one based on what we each do best. As a result, those that seek us out get the best services possible.

Only 1% of our US population has served in Iraq and Afghanistan on numerous tours. Our staff members believe we are part of the 99% who need to support those that have sacrificed so much and have so much to offer. We are ready to serve.

 

What can you do? The Campaign for Disability Employment

Editor’s Note: Sara’s post originally appeared on the Easter Seals Crossroads blog. Check it out!

At Easter Seals Crossroads, we emphasize ability in everyone. Each day we encourage children and adults to do what they think they cannot do. That may mean riding a bicycle for the first time, learning to drive a vehicle with adaptive equipment, or finding meaningful employment opportunities.

The Campaign for Disability Employment is a collaborative effort to promote positive employment outcomes for people with disabilities by encouraging employers and others to recognize the value and talent they bring to the workplace. “What can YOU do?” is a positive outreach initiative aimed at increasing the employment rate of people with disabilities by challenging common misperceptions.

Funded by the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP), the campaign is in partnership with several other organizations to offer resource materials that educate businesses on why hiring people with disabilities is important. As of May 2013, 20.7% of people with disabilities were employed, compared to 69.1% of people without disabilities.

Their award-winning public service announcement (PSA) was recently aired at the Indianapolis 500 and reached over 1.3 million people over the race weekend.

The Campaign for Disability Employment lists these ways in which YOU can make a difference:

  • 1. Hire, Retain and Advance People with Disabilities — Businesses that are inclusive of people with disabilities promotes workplace success for everyone. At Easter Seals Crossroads, we provide pre-screened, qualified job candidates that are dedicated to long-term careers. A relationship is built between your business and needs and our staff and candidates so that there is a reduction in the risk with hiring for your positions. Additionally, long-term support is provided at no expense to ensure job retention and mutual satisfaction.
  • 2. Be a Mentor — Inspire youth with disabilities by encouraging them to dream big and develop the skills they will need to succeed in the workplace. College students in Indianapolis can apply to be a mentor with Peer XChange, where students with autism are paired with college students to focus on skills that relate to time management, social activities, connecting to campus resources and transitioning to the college environment.
  • 3. Share the “Can-do” spirit – Become a fan of their Facebook page and watch the PSA above to become an advocate for the campaign. Fan Easter Seals Crossroads on Facebook to interact and learn about how you can become more involved with the campaign directly in your community.

If you are a young professional in Indianapolis that would like to get more involved in this initiative, consider participating in our newly-formed young professionals group. We are looking for individuals who can be advocates for people with disabilities while educating the community about the services that we provide at Easter Seals Crossroads. For more information, contact me:

Sara Croft
317-466-2002
scroft@eastersealscrossroads.org.

 

Mervin, and other Hollywood stars, too

You might remember Mervin Roxas from when I introduced him in a post here back  in November. He’s a Program Assistant at Easter Seals Southern California where he also works as a Life Skills Coach. He’s also become a little famous — in May, he was caught hanging out in Hollywood with celebrities who support veterans.

Hangin’ out in Hollywood

By Mervin Roxas

Mervyn and Monica Potter from 'Parenthood'

On May 29th and 30th, we had the pleasure of representing Easter Seals at the Variety Emmy Studio in West Hollywood to talk about our mission of serving veterans and their families at various levels. Most of the celebrities showed great interest in Easter Seals and applauded our efforts toward this cause.

Meeting these celebrities made me realize how many people are actually affected by veterans’ issues, and the number of lives Easter Seals has touched.

Kat Dennings from Two Broke Girls, Emmy Rossum from Shameless, and Hayden Panatierre from Nashville all expressed their support towards veterans’ services because someone close to them served in the military. Mayim Bialik from The Big Bang Theory and Charles Esten from Nashville were thrilled to speak with Easter Seals staff since they knew someone who has been served by Easter Seals or supported Easter Seals before.

We had a great time hanging out with Monica Potter from Parenthood as she shared with us her passion for supporting veterans. A few days later, she even Tweeted about Easter Seals and posted a picture of her with her sons, and both of the boys were wearing the “Support Our Vets” shirts we gave them!

Over all, it was an amazing event in which Easter Seals received tremendous support from the entertainment community. We would like to thank CK&D and their incredible team for making all this happen. It seems there are many more exciting events that are coming up and Easter Seals is definitely moving in the right direction. Stay tuned on Easter Seals Facebook and Twitter tomorrow to see my photos with the Emmy nominees!

 

“I’m a very valuable person”

The article below was featured in our July eNewsletter. We love sharing Easter Seals news, so if you’d like to receive our eNews every month, sign up here.

Like many young adults, Irene was struggling to find her way in the world. She yearned to be more independent, connect with others and find a satisfying job.

“I didn’t feel like I was going anywhere,” says Irene, who has Autism Spectrum Disorder. “I didn’t feel like I was so important.”

Irene turned to Easter Seals for guidance with defining her employment goals, developing her skills and searching for a job that suited her interests and abilities. Her persistence paid off when she was offered a position as an accounting clerk with a company that provides mobility products, wheelchair accessible vans and services for people with disabilities.

Now with renewed confidence, Irene is thriving in countless ways. Watch her movie and learn more about Easter Seals Workforce Development Services.